I wish I knew then what I know now ! I made the mistake of saying this to my GP the other day and she became rather defensive asserting that they always strive to give the positive outcomes and remain optimistic for their patients. However, I have wasted five years of my life because all of the debilitating conditions that I kept being told that I might be able to overcome. Except for my husbands love and care, I would not be here. I frequently felt as if I were crazy (I did become seriously depressed), a fraud, or that everything was my own fault, especially as I am a fat person. Looking back, I am only responsible for two things; I allowed things to go on for too long trying to cope with it independently, and I did not pin down the experts (so-called) to help me understand exactly how things were. I eventually accepted counselling-although I was very reluctant-and it was she who gave me the skills to be realistic and confident in asserting my needs. After having been unable to go out alone for more than two years now, I am finally accepting a motability package, and have purchased a second hand scooter, which although is not ideal, will allow me to get to a local shop or my friend's house on a good day.
I think the point I am trying to get across is to reassure other disabled and CPS people that the doctors are tied up by their feigned optimism, the universal worries of possible litigation, and financial (and time) restraints in the present day health service. Thus, please do not feel that you have to be a grateful and patient recipient, but stand your ground, and politely demand what you need. Living with pain is an isolating sub-existence that only another sufferer can understand.
I trained as an SRN so can see both sides of the case, but I was also forced out of my teaching career by disability and without any real source of information to cope or move on. I'm no longer embarrassed to be seen in a wheelchair, or for visitors to notice a commode in the bedroom, but ,oh dear, the waste of time and emotions. I hope this may inspire anyone who is going through the uncertainties I endured.
A final thought: a caring counsellor can be a lifesaver!