Hi peeps not been on for a bit as been doing wedding stuff, I saw my consultant (armed with a list of questions as long as my arm) on Monday to be told that the PVNS I have in my left leg is infact in both my knees and as it's systemic it is more than likely in my other joints too. He also went on to say that with my other list of inflammatory conditions I most like don't have Fibromyalgia but some kind of autoimmune disease as this is linked to PVNS. I've now been referred to a Rheumatologist to have further tests and treatment. To say this has all been a bit of a shock is a bit of an understatement and I'm now anxiously waiting to see this Rheumatologist to see what happens next. Anybody else had any dealings with this rare disease I have??
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