Remission, but no dancing with NED
My mum finished her treatment for stage 4 ovca 6 weeks ago, 4 rounds of carbo/taxol, optimally debulked and 2 more chemos. She had a scan last week and today was the big appointment to tell us the results of her scan.
Im so confused by what they said. I was hoping against all hope that they were going to say "congratulations you are in remission and there is no evidence of disease" ... It wasn't to be
To cut a long story short they said that there is "nodularity of the omentum and peritoneum" which they said means that on the scan her omentum and peritoneum don't look normal but they can't tell if it is scar tissue which is possible but it is more likely that it is cancer cells that are left, although there is nothing big enough to measure, its just irregularities. There was also a lot of talk of lymph nodes, and again they are not sure anther these are normal size or not but they are smaller than they were at diagnosis. However her ca125 is 17 so they say that anything that is there is dormant and that apparently is good.
I have been so strong for my mum for the last six months, but today I just cried my heart out when we were there. They say she is in remission but how can this be when they can still see things on the scan. I think maybe they were trying to make us feel better by saying that some women they have in their care have had 1-2 years remission with similar circumstances to my mum although it is just impossible to tell how my mum might do.
I am so very low, I love her with every last piece of my heart and the thought of not having her with me is utterly unbearable, I am desperate for some advice, encouragement and similar survivor stories. Is she in remission? Is there no hope without NED? My heart is broken, please help xxx