ovianian cancer : I would like to ask if anyone... - My Ovacome

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ovianian cancer

Curry55 profile image
11 Replies

I would like to ask if anyone has refused maintence therapy and still being ok

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Curry55 profile image
Curry55
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11 Replies
ZenaJ profile image
ZenaJ

Hi Curry 55. I didn't actually refuse maintenance therapy but I was never offered it. I was stage 3C in 2013 so have lasted a long while without it. I don't know if it was even available back then. Hope this helps. Zena x

Curry55 profile image
Curry55 in reply toZenaJ

Thank you It helps to make a decision

SopSinger profile image
SopSinger

Maintenance therapy didn't exist when I was treated. Still here 18 years later, no recurrence.

Curry55 profile image
Curry55 in reply toSopSinger

Maintenance drug I am not thinking of coming off it when I have my scan and results Can I ask your journey with if Was it high grade cancer that was aggressive thank you

Curry55 profile image
Curry55 in reply toSopSinger

I mean I do want to come off it

Lilyada profile image
Lilyada

Hi Curry 55. I was diagnosed 3c in February 22. Had op then chemo, finishing October 22. Chemo was delayed a few times because neutrophils were so low. I was given the choice to have Niraparib or not. I thought about it, having read all the information, then told my oncologist I did not want it. It was only then that she agreed with my decision. I'm 74 now and am still ok. I’m fine most of the time; my digestive system has played up ever since which does give me the odd reason to worry but am generally positive and am grateful for each day.

All best wishes, Angela

Leniko profile image
Leniko

no. I took Avastin. It worked for many years. I encourage you to do what your Onco recommends. Otherwise, have frequent bloodwork/ scans. Good Luck.

Motiva profile image
Motiva

I was very grateful to be eligible for a PARP inhibitor and bevecizumab. Compared to the adjuvant chemotherapy it is very manageable. What is putting you off?

Curry55 profile image
Curry55 in reply toMotiva

I feel it does not make me feel good Awaiting results before I make up my mind after ct scan

delia2 profile image
delia2

Hi. I refused Avastin after frontline (HG 3B) and recurred 8 months later. After second chemo I was on Olaparib for 3 years then one more year ned on nothing and now in chemo for second recurrence.

Goodgirl98 profile image
Goodgirl98

I am on olaparib as I am brca positive. Two year course is getting over this June and if given an option, I will continue with it. If you have an option, please check it out before turning it down.

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