Spoke to my consultant yesterday, it seems my nurse specialist had not given me the correct information.
Cancer signs are now on both lungs, in my peritoneal area, and under my spleen (not the spleen itself). I am getting some pain in my lung area and it's really worrying me 😔
Surgery is still going ahead although my tumour has only shrunk slightly. 3 more chemos will follow.
Has anyone else had spreading to the lungs & gone into remission eventually?
Hi, Kazzh, sorry you got misinformation which must have made your consultants news more of a shock.I'm not not quite the same but I had had fluid around my lungs at the start that was drained then stage 4 OC comfirmed , I had chemo radical surgery chemo but I'm still here after nearly 4 years . Ups and downs treatments etc but still here. And there are many others doing well after many more years.your surgeon would not offer the operation if they didn't feel it gave you a good chance.
Sending you positive vibes and hugs.
Take each day as it comes and treat yourself to special things to distract you. you deserve it. This stupid Cancer can be all consuming in your thoughts.
Wishing you good luck. You can do this xx
That's so encouraging thank you and I'm so pleased you are still here and enjoying life ❤️
Hi There, sorry to hear what you're going through. I was diagnosed in Sept 22 at 43 with a plueral effusion in my left lung and either nodules or scar tissue there. Chemo did work for me but because of the pattern the cancer took in my abdomen I was unable to have surgery despite 2 attempts. This wasn't because of the pluera issue though so don't worry and most people I speak to have had surgery so I don't think this happens alot.I just wanted to say my journey has been far from textbook and very daunting at times but I'm still here well and enjoying my life. Cancer really is a rollercoaster of hospital appointments and up and down emotions especially in the early stages. Information can be incomplete and one day you're getting bad news and the next you get some good news to counteract it so hang in there.
So a year and a half later I am stable on Niraparib, I guess its a kind of remission and feels as good as. At the start I was so focused on curing it that I didn't realise there were other ways that treatment could give me a good quality of life. I hope it continues🙏I don't know what next month may bring but I'm living for now and enjoying everything I can.
Also you can get strange twinges here and there on chemo, they can be transient but anything that is sticking around I let my team know and I often find this eases my worries a bit.Take care and reach out for support as and when you need it💛
Send healing vibes xx
So encouraging to hear this, thank you 🤗. You are so right, it is such a rollercoaster. They are keeping an eye for pleural effusion. It must have been worrying when they couldnt operate, did you have further speading or did you have more chemo after? Love your attitude towards your journey & long may it continue 🙏💞
Hi, I don't think I had further spreading, it was just bad to start with by the time I was diagnosed. Chemo worked to a certain extent and brought my CA125 into range and it still is. Tbh I was in total disbelief when they said they couldn't operate! After the second attempt I didn't have more chemo just Niraparib. I was scared to just go onto Niraparib but so far I'm doing ok. I think positivity and advocating for yourself goes a long way, I don't believe necessarily in fighting it but I'm standing up to it and finding my way. I have good support around me, eat in a balanced way, a little exercise, low stress helps! I hope you can access support as you need it and find what works for you day by day xx
Prayers for you with your upcoming surgery and chemo treatments. Stay positive. 💜 Liz
Spread to lymph node in neck
Operation
