Hi ladies.
I haven’t been on here for a while but when I do log in I am always interested in how you’re all doing & reply if I feel my experience can, in turn, help yours.
I was first diagnosed Feb 2018, then had a relapse ( but possibly not as surgeon Prof CF felt the tumour she removed could well have been from my first diagnosis) in 2020.
After this 2nd op I had 6 cycles of carbo only. Once that finished I was put on Niraparib & still taking it to this day. Feel so grateful it has been working for me.
My CA125 has started to rise a lot more recently ( than in the past ) & I'm wondering if something is lurking.
I started HRT ( gel form in August 2022 ) which my oncologist was happy for me to do ( I was fed up of my hair dripping with sweat & felt embarrassed when out & this happened).
My question to you wonderful ladies is, if you’ve been told your cancer is oestrogen receptive, how did they find out?
I do not know if mine is but thinking by having the Oestrogen only HRT gel it may well have unsettled things.
Both Prof CF & my oncologist are away on holiday at the moment so can’t ask them whether there could be a connection.
Since last bloods ( they take from me every month) I have stopped the HRT to hopefully give me some idea if this has anything to do with my rise in CA125 levels . Next bloods 25th April.
I’ve also had a stressful couple of months ( my father in law died after being in a hospice for over a fortnight ).
Just hoping something else has caused this rise instead of the cancer rearing it’s ugly head again 🤞🏼
Thank you in anticipation of your experiences & help with this
Take good care with love Lynne xx