I had my last infusion of Avastin on Wednesday and am continuing with Olaparib tablets.
I’m so thankful for the care I’ve received since diagnosis 19 months ago and we’ve successfully reduced the tumour, my CA 125 was 51, 4 weeks ago (it was 16985 in April 21!) and I’ve put some weight back on, which I now need to keep under control. I literally took my consultants word when she said I could eat what I wanted when I wanted!….
Apart from an almost constant runny nose I have tolerated Avastin quite well, and am keeping everything crossed that it has done its job.
I promised myself at the start of my OC journey that I would face whatever came at me head on, be positive, to stay in the present and forget about the what if’s. This philosophy has got me this far and I’m pretty sure it will get me a lot further.
I don’t have a huge family around me and due to his own health issues my husband is unable to support me mentally and emotionally so I find great comfort in being part of this community. Although I don’t post very often, I do read the posts and I want to take this opportunity to thank everyone for their contributions and great advice.
Stay strong and keep the faith.
Fiona x
Written by
MrsSkippy
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Hope all continues to go well for you and know your positivity is key! Im having 2nd round of chemo only,following a recurrence straight after stopping last chemo and starting on niraparib.Just wondered if you all have to pay for your Avastin ,as i thought NHS doesn't normally do it due to Nice rules.
rearly good to hear your thoughts Fiona, thank you. I also don't have a big family network- 2 lovely daughters who are great but struggle themselves with all of this, so being part of this network is amazing. I'm also on Avastin and Olaporib though its not working so well for me- still on it at the moment though. I've also gone from underweight to 10lbs over where I'd like to be! Still grateful to be eating well and being able to do lots of things. Sending you the very best going forward. Let's make the most of all we can
I dont have any family and have found the time since diagnosis very lonely and frightening. This forum has been a great source of information and support, a chance to offload and have a winge and knowing others know exactly how you feel
Thank you for sharing your good news with us, Fiona. I’m so glad you’re doing well. “Sharing is caring” certainly holds true for all the teal ladies who support each other on this forum.
Thanks for your heartfelt post, Fiona. I hope you stay stable on Olaparib. It will be nice not to have infusions now! You have a great attitude and it has reminded me to appreciate the times of feeling good. Xx
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