What to expect with avastin? : Afternoon everyone... - My Ovacome

My Ovacome

15,082 members17,659 posts

What to expect with avastin?

LouieB123 profile image

Afternoon everyone, it’s been a bit since I posted. I hope you’re all doing ok.

Mum starts avastin today, then olaparib in tablet form in a few weeks. I’m just wondering if anyone has any experience of these targeted therapies and how you got on? Mums terrified about side affects etc…I know there are a zillion side affects, but then so is there with anything I suppose. It would be good to hear some experiences.

She’s doing very well atm and scans good, so I think part of her feels like she doesn’t want the therapies as she feels well and doesn’t want to feel poorly again.. but she knows she has to give it a go. Xx

9 Replies

Hi Louie B123I have had both but separately. Avastin was much easier than chemo, felt mostly normal but it did give me nosebleed. Olaparib has also been very tolerable, a bit of nausea and tiredness to begin with but it wore off.

I am such a wuss when it comes to meds and new side effects but honestly it’s been fine. Good luck to you and your Mum xx

LouieB123 profile image
LouieB123 in reply to Lyndy

Hi again Lyndy, I hope you’re doing well :)

Thank you- that’s great, so reassuring to know people do really well with it. She’s en route home now after a good several hours there, she’s relieved first one went ok and no reactions etc so far so good. Laura Xxx

I have been getting Avastin every 6 wks to keep an inoperable tumor from spreading. Few if any side effects.

I was on Avastin for six months, but I was also getting Gemzar infusions. I had joint and muscle pain in my hips and shoulders, but overall it was much much easier than frontline carbo/taxol. I also had a runny nose. I recently started niraparib and I was also terrified by the list of side effects, but it has been quite manageable. A bit of mild nausea and constipation have been the only issues.

Hi Joanna bell. Were you on Avastin and niraparib at the same time? I will start second line chemo soon and wonder about maintenance treatment. Thank you. Best wishes from Louisiana,

Sashay

No, I was on avastin and gemzar, and then I started niraparib a few weeks after for maintenance. Where in Louisiana are you? I grew up in Shreveport and I am going there today to visit family. ✌🏻

I’ve lived in New Orleans for forty years. I hope you have a safe and enjoyable visit. 🙂

Hi, I havnt had avastin but on olaparib and had very few side effects and am feeling good so far been on it 6 months now. I call them my magic tablets! Hope your mum continues to improve abd gives the treatment a go x

Hi, I am BRCA+, stage 4 OC (diagnosed Oct 2020, 54 years old). I have been on Avastin as part of the chemo and now as maintenance and started Olarapabib 5 July. So far I am doing well with my CA125 stable and below 10. Kidneys are ok, bloods are good. Main side effects: being tired and sore, stiff joints from Avastin (getting worse). Lynparza took about 6 weeks for my body to adjust and after 2,5 months the side effects (except being tired) all gone.

The combination of Avastin and Lynparza (PARP inhibitor - if it works) is one of the best possible treatments available at the moment with really good success rates. They don't have long term studies yet, but many women (stage 3 and 4) are beyond the 5 year survival rate on this regime (if I can find a clip to share the results I will share it again. I posted it some the ago in reply to some questions on this regime. Presentation by a Prof in UK)

You may also like...