CA125 Increase again!!: Hello ladies I hope that... - My Ovacome

My Ovacome

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CA125 Increase again!!

Caleda4 profile image
Caleda4

Hello ladies

I hope that you are all keeping as well as possible.

This afternoon I had my monthly telephone Consultation, and my CA125 is now 39. So obviously not affected by vaccine as that was way back now. Anyway I do feel very well,and the Oncologist told me to keep taking the Rubraca and not to worry!! Easier said than done,but if it continues to rise a scan will be the next step.

Watch this space.

Ea

24 Replies

Sorry to hear that. My mums is currently 27 and we are hoping it was the jab. Won’t know for another month. She also feels well.

Caleda4 profile image
Caleda4 in reply to N-A-58

Pleased that your mum feels well,and hope that the increase to CA125 is due to the vaccine.

N-A-58 profile image
N-A-58 in reply to Caleda4

Ill be honest, I’m more worried now. It bounced around 15-19 for a bit then jumped to 27. There’s nothing we can do except take each day as it comes. Glad you’re also feeling well.

Caleda4 profile image
Caleda4 in reply to N-A-58

Thank you, and I sincerely hope that your mum continues to feel well.

I'm in exactly the same position as you since starting Rubraca my Ca has gone up from 14 to 19 now 38 , scan booked for July 14 th. My oncologist said not to worry , easier said than done .Ladies on here have said this can happen on a parp ,but I feel the rug has been pulled from beneath my feet. All we can do is hope,and hopefully enjoy life while we're waiting , wishing you luck and sending love.Cheryl.xx

Caleda4 profile image
Caleda4 in reply to fendweller

Hi Cheryl, Yes we seem to be on a similar path. I feel like you in a way,wondering what is next. We are due to move house on the 21st June,so I will have a new Oncologist,who I do have an appointment with on 1st July. I am hoping that I get another blood test then. Totally agree with enjoying life during the interim period. I wish you luck. Love Caleda x ps Do keep in touch.

fendweller profile image
fendweller in reply to Caleda4

We spend our lives wondering what's next, but then we just get on with it ,it's the only choice we have. Im in awe of you moving house,I don't even have the energy to clean mine ,thank God for my fairly capable husband, wish you luck with your move and hope your new oncologist is amazing.Cheryl x

Caleda4 profile image
Caleda4 in reply to fendweller

Thanks Cheryl,That is really kind of you. You are right we do spend our lives wondering what might be next, but like you I do tend to just try and get on with life. We are down sizing to a place with a small garden,which is sad really as our current garden is so lovely,but far to big now. It will be within walking distance of shops which is also a bonus. I hope that the new Oncologist is ok,as the one I have at the moment is brilliant. Onwards and upwards. Have a good weekend.x

fendweller profile image
fendweller in reply to Caleda4

You have a good weekend too ,I'm sure you'll make your new garden lovely too.Cheryl x

Caleda4 profile image
Caleda4 in reply to fendweller

Thanks. x

I’m worry myself too my CA 125 went up to 243.5 called my dr. and surgeon as well they are not worried 😟 This was their answer 😟😟😟 any advice please

Hi Ana,

I have had a reply from Mrxxxxx ;

He is not concerned as you have no symptoms. He will see you at the end of July and will repeat your CA125 then.

Caleda4 profile image
Caleda4 in reply to Hope2010

This is difficult, I am guessing they wait until symptoms occur. Have you had a CT scan? I hope that you continue to feel ok.

Hi Caleda, I’ve done a bit of research since I last posted and apparently, if it is down to the jabs, it can continue for quite some time. Target Ovarian Cancer have had queries about it and they said that while there’s no definitive research done yet, it does seem to be a factor for some women. Take care. J

Caleda4 profile image
Caleda4 in reply to JanL100

Hi JanL,Thank you for that information. I have been taking the parp Rubraca since before last Xmas,& my CA125 has been fine until the vaccinations,when it started to rise. It could be that the Rubraca has stopped working,but no doubt I will find out if it is decided I should have a scan. It is strange really because before my recurrence in 2019 I had a shingles jab, & I just had this feeling that it actually affected me although there is no proof. Take care, Caleda

JanL100 profile image
JanL100 in reply to Caleda4

Hi Caleda, I think that the more we ask the question, the sooner some proper research will be done. I keep telling myself that while I’m not being given bad news, I’m taking that as good news. We’re all just hoping for the best aren’t we, that’s all we can do. I did wonder if having my spleen removed during surgery might have made the marker go up from 27 to 232 as the antibodies get to work. But all I can do is wait and see. Good luck with the move.

Heres hoping it starts to drop and the Rubraca starts to kick in x

Caleda4 profile image
Caleda4 in reply to Katmal-UK

Thanks Kathy,that is very kind of you.x

I’m sorry to hear that your marker has risen. Hopefully it will go down when tested again . I too was hoping that the vaccine might be affecting CA125. Kindest regards,

D

Caleda4 profile image
Caleda4 in reply to Dollie22

Hi Dollie, Thank you for your reply. I hope that your CA125 stays stable.

We have a Rucaparib club here!

Membership by invitation only. Initiation ceremonies Strenuous. Monthly meetings with mandatory attendance.

When I started on it my oncologist said she would be very surprised if my CA125 ever got below 15 but it did. It’s been hovering between 10 and 12. Last month it had gone up a point but she said not to worry. I am feeling very tired and get some aches and period type pains so I’m having a scan in July.

Hang on in there sisters. X

Caleda4 profile image
Caleda4 in reply to JustKBO

It is a good thing we do have this Rucaparib club now. There seem to be more people being advised to take it which is great providing it works,by that I mean everyone is different. I felt tired when I was first on the drug,but now I feel fine which is great so long as it stays that way. I am nervous as it is above the recommended magic 35 in the uk,but i was told not to worry, although i must admit i find that difficult sometimes.I hope your scan in July is ok. Take care.x

I had the same thing last year when I took Zejula. Unfortunately my doctor was out for about 6 months and I was with a different dr. at the time. New dr. kept telling me the same thing, just take the Zejula. I was able to get back to my regular dr. and he sent me to CT and I had a new surgery right after.

I am sorry you had to go through further surgery,but hope that you are ok now. This disease keeps you on the edge all the time, if this, if that. I am hoping to get a scan in July. Thanks for your reply.

Hi Caleda4, I hope you worried are solved by now and you’re less anxious about your CA 125 rise.

I’m hoping this message goes out to my friends on Healthunlocked. Thank can’t answer any messages and can’t seem to update my profile.

Love from Angela x

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