Oh, you fiendish CA-125 tests! I know there's lots of posts about this, but I'm stewing about this issue as well. It's such an emotional battle; cognitively I know it's within normal limits, but that doesn't completely help the panic about it. My CA-125 just doubled from 9 last month to 18, this month. I'll see my oncologist (in person! Yeah!) on Tuesday. Its been 14 months since end of front-line chemo for me, I'm on 100 mg of Zejula, and am HRD-. My CA-125 does seem to bounce around; 13,11, 11, 12, 13, 13, 11, 23, 13, 15, 9, 18 all since the end of chemo. So 18 is scary to me, although it was 23 once (no clue why) and went down. Maybe allergies? Maybe because I have an inflammatory arthritis but cannot take Humira for it anymore because of OC? As fast as I can come up with reasons why it's ok, I come up with ominous statements of "it's the end." I was even feeling pretty confident about this last blood draw, and now I feel like I jinxed it by not being anxious. It's so hard to explain to family or friends (they want to reassure) how much CA-125 can haunt us. . . .
Thanks for listening, you wonderful ladies!
There is actually a disorder called CA125 neurosis, apparently.
I have a type of RA, but I am on a different drug for it. I can well understand why your concern about your numbers but CA125 is a non specific test for abdominal inflammation and one doubling doesn't mean your cancer is back.
It could be you've had a stomach upset or something like that. RA does affect CA125, so could it be that?
I just wish you all the best on Tuesday, when you will find out more. Please try to relax until then, and trust your body to heal itself. It's only 2 days away now, so give yourself a rest.
Oh, I definitely have that neurosis now! My arthritis affects tendons and my gastrointestinal system (it’s weird). I’m suspecting my feet are having some inflammation. . . But neuropathy in my feet are masking some of that pain with the different feelings of neuropathy. . Of course, I would love for this to be the explanation, but the I worry I’m grasping at straws.
It definitely bounces around with GI inflammation. I know mine tripled when I had heat stroke and then grew by a factor of five when I had a surgical hernia repaired. It's now bouncing around in the hinterland of 25 - 35, but there is no recurrence - that's after 11 years.
Thank you so much! It's so wonderful to hear stories like yours! 11 years! Keep on going!
Thanks Victoria, really needed to hear this today!