CA 125 rise in a Month but still in the normal ... - My Ovacome

My Ovacome

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CA 125 rise in a Month but still in the normal range.

PCCDaisy profile image
15 Replies

Well Hello...

Just finished up my 16 weeks of Taxol and now before I can get two more rounds the insurance wants me to get a CT Scan before they will pay for anymore. Which fingers crossed am NED and then to maintenance with my Parp.

On the flip side, last month my CA 125 was 11 and this month it is 25, am a little concerned. Did call my Oncologiat and he wasn't too concerned seeing that I am still below 35 and it isn't a trend. Plus this month getting over severe bladder irritation and twisted my knee.

Has any one else have a 14 point jump that much that didn't deal with cancer but more dealing with inflammation?

Thank you again my teal sisters for all of your wonderful insight, love and concern.

Cheers 🥂🥂

Shelly

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PCCDaisy profile image
PCCDaisy
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15 Replies
Supermary profile image
Supermary

Hi Shelley You need the CT SCAN to really know

My oncologist said the CA125 can fluctuate as much as 10 pts in any direction

They look at trends but mostly they need your scans as well for a complete picture

Got my vaccine

In trial drug SELINEXOR and so far clear scans thank God

Wishing you the best

Margaret

PCCDaisy profile image
PCCDaisy in reply to Supermary

Had no clue about the 10 pts in any direction, good to know.

So happy about your clear scans, also wishing you the best too...

Frannyfrank52 profile image
Frannyfrank52 in reply to Supermary

Hi Supermary Can u tell me where your trial is located. In in the US. At Sloan Kettering NY

Supermary profile image
Supermary in reply to Frannyfrank52

My trial is at MSK I signed up and qualified

It’s a double blind study in PHASE 3

Selinexor is the drug I take it 4pills every Wednesday

I was tested out of both NYC and Westchester

Newbie_2020 profile image
Newbie_2020

All fingers crossed, Shelly, and prayers that your scan shows NED. CA 125 can have a delayed response. I hope it is nothing to worry about and this increase in CA 125 is only due to the severe inflammation that was in your bladder. Happy Easter x

Eriksendi profile image
Eriksendi

Yes mine was at 11 and jumped to 32. It was re-tested 3 weeks later and dropped back to 22, and then another month later and had dropped back to 11. I had bowel and constipation issues at the time, so can only assume that was the cause.

Lyndy profile image
Lyndy

Hi ShellyMy ca125 is often up and down due to rheumatoid disease...so I suspect that a severe bladder infection might be responsible...hopefully you will see it reduces again now you are through the illness xx

Cropcrop profile image
Cropcrop

Hi Shelly,

It’s likely your bladder infection is the cause of the CA 125 increase. Inflammation or infection can increase the levels but I’m sure your oncologist will monitor you thoroughly. Well done with the weekly taxol, I hope your CT shows NED and you can get the remaining two doses followed by the parp.

Keep on keeping on lovely, you got this ❤️xx Jane

SASSY196 profile image
SASSY196

Are you US? If UK switch back into NHS for last two if needed?

PCCDaisy profile image
PCCDaisy in reply to SASSY196

Yes am in the US, so it is all up to my insurance company.

SASSY196 profile image
SASSY196 in reply to PCCDaisy

Ahhh we are so lucky in UK in many ways. What happens if no insurance, is there a basic service? Good luck with CT scan Shelley, hopefully it's inflammation from bladder infefection x

PCCDaisy profile image
PCCDaisy in reply to SASSY196

In the US basically if you don't have insurance thru your employment you are on assistance or you bought your own plan.

Ruebacelle profile image
Ruebacelle

Well...CA125 can fluctuate with inflammation but in re insurance taxol reduces and controls. Not necessary to be ned for it to work. I have 2 half inch tumors stable since september now switching to a hormone blocker so I can regain strength after 25 taxols. Hugsfrom france

Seadream profile image
Seadream

My oncologist said fluctuation can occur because of any trauma to the body. Even a car accident can raise your number so your issues could easily be the reason for the number raising. Your knee and bladder could easily be the culprit!

Frenchhouse3 profile image
Frenchhouse3

Hi Shelly,In April of last year I had Covid and my CA125 rose from 18 to 39. As you can imagine, I was very concerned. However, as my symptoms finally disappeared, my CA went back down to 17!

My Oncologist just monitored me ( I was having monthly bloods because I’m on Olaparib ) and says this happens with many infections in the body.

Hopefully, that’s what yours is too, sounds very likely.

Love Denise xxx

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