Thank you to the ladies that replied to my earlier post ,just putting my fears on here helped me get it into proportion . Back from oncology appointment with a smile on my face , my CA125 is normal ,I was convinced it was rising , was told to avoid social contact ,especially grand children ( 13, plus 3 great grandchildren) this I will find hard ,but looks like I'll have to do it . Take care ladies,stay safe .xx
Cheryl.
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Hi Cheryl, so pleased to read your good news! I have a monthly check as I’m on Olaparib and each time I feel so anxious I’ll be given bad news. I have one tomorrow in fact. ( This will be my third).
I guess as time goes by, our confidence may gradually improve. It’s hard though isn’t it?
Your news has cheered me up though and it’s helpful knowing that I’m not the only one who panics!
Thank you Denise , really hope your news is good tomorrow, I hope it will get easier for us both , let me know , good or not so good me and all the ladies are here for you .xx
Thank you Cheryl, I will do that. It’s just so scary. I didn’t even ask about my CA 125 last time as I thought, if it’s gone up, my consultant will tell me. I’d sort of like to know but then I worry if it changes even by one point!
Thanks for being so understanding, it does really help.
I don't ask either ,he said normal last time and same today , realized when I left there was things I hadn't asked ,usually write a list but didn't today , happy to help ,anytime ,be thinking about you tomorrow. Xx
Well, I’ve had to cancel three planned outings ( making up for last year ) which was disappointing but there will be other times in the future and we’re all in the same boat.
Going to go for a nice country walk instead.
Hopefully, by Summer, we can all start doing the things we like again.
Excellent news well done you 👍🏻. Don’t you think that the pre appointment jitters we all get make us over analyse our various twinges and in turn convince ourselves we are not well? I’m thrilled your CA125 was good and long may that continue. I’m sorry you can’t see your family but better safe than sorry. Keep on keeping on lovely and thank you for sharing your good news. Virtual big hugs (best we can offer at the moment 🥴) and love ❤️Xx Jane
Wonderful, so pleased for you. I am going to join some online games forums with my mum to play Scrabble etc, is that something you could do with grandchildren/ great grandchildren- there may be ones with children's games.
As well as possible, yes, given I'm waddling around looking 7 months pregnant - a combination of a huge incisional hernia and ascites. I am rather wondering what the chances are of being drained with all this virus stuff going on when it gets really bad... but hey ho, these things are sent to try us!
I hope everyone does, but I'm not banking on it - we're all in deep doo doo really, aren't we. Viral infection, the great leveller... no point panicking though, is there, what will be will be. Take care
Great news Cheryl. We are isolating here in France. OH currently having chemo for recurrence just 3 months after finishing first round of radiotherapy/chemo. It’s now in his lungs so very vulnerable. My next check up will be in June.
It’s sometimes so hard to keep the positive head on and this virus has just amplified it all.
Great news! Now you can exhale! I know how you feel not able to be around the grandkids. Thank goodness for FaceTime...unless you are me and your granddaughter decides to run with it. Got me dizzy! Lol.
As I was telling my granddaughter to stop running with the phone because I was getting nauseous, I could hear my son in the background “mom, just stop looking at the screen”😂
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