To all you lovely ladies: I have been on this... - My Ovacome

My Ovacome

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To all you lovely ladies

Caroles1 profile image
84 Replies

I have been on this site for 3 1/2 years, there have been good times and too many bad times recently.

I feel I can’t give anymore and have to get on with my life. I think losing so many ladies recently has got to me and Lily Ann the final straw.

There are so many new joiners that I’m sure will make new relationships and help each other, but I feel I have had my time.

I wish you all well and good health,

Love you all,

Carole xx

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Caroles1 profile image
Caroles1
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84 Replies
Shellygirl profile image
Shellygirl

Hi lovely 😊 it is so difficult and knocks us for six when we lose our precious friends to this horrible disease. I feel exactly the same and so understand. Sending you hugs and love always xxx

Caroles1 profile image
Caroles1 in reply to Shellygirl

You know how I feel, hunny, keep in touch, I am just checking out for a while, I am just amazed at the response, didn’t do it for that.

Just got very sad over the last few months and LA going was more than I could bear.

Cxxx

Petrolhead profile image
Petrolhead

Hi Carole

Thanks for your contributions and I can understand why you feel this way. It can be draining with a lot of people struggling. Enjoy your life and feel free to pop back at anytime.

Best wishes

Fay

Caroles1 profile image
Caroles1 in reply to Petrolhead

Thanks Fay,

It’s hard to leave, but find it hard with so many honest ladies suffering that shouldn’t be and so many charletons trying to get through.

I wish you all well, you are stronger than me and feel free to pm me if you want,

Love Cxx

Yoshbosh profile image
Yoshbosh

Hi Carole,

I understand why you feel the way you do. Go and enjoy your life, cherish your family, and think of us sometimes and smile.

Vicki xxx

Caroles1 profile image
Caroles1

Thanks Vicki,

I always think of you girls, it’s just hard and I don’t feel I can give any more advice.

I really wish you all the best and you can always pm me if you want a chat

😘xx

Yoshbosh profile image
Yoshbosh in reply to Caroles1

😘

CallmeMum profile image
CallmeMum

Hi lovely,

I’m so sorry you feel this way. Go and live your life and enjoy it remember if you ever need us we’ll be here for you xxxx

Caroles1 profile image
Caroles1

😘

Purple-iris profile image
Purple-iris

Hi Carole

Can totally understand how you feel. It’s been so sad recently and becomes overwhelming. I really thought Harpist would beat this. 😢

I often wonder if I’m doing the right thing spending so much time volunteering for OCA as some weeks OC is all I seem to focus on. Very rewarding but I think after awareness month finishes I might have a break. We all need to find a balance.

We’ve got holidays to Scilly Isles and Watergate Bay to look forward to as well as my daughters graduation.

I meet up most months with some of the ladies from Guys so if you ever want to join us pm me.

Take care my lovely, thank you for all your positive posts, you were a great help to me after my treatment. Enjoy your beautiful family and fantastic holidays

Love and best wishes Kim x💜

Caroles1 profile image
Caroles1 in reply to Purple-iris

I am overwhelmed by the amount of replies I have had,so,I have decided to bow out for a bit (sounds like you need a break too).

I have a lot on at the moment and I feel terribly sad over some of ladies demise.

I think I am going to have a little break, but pop back in a few months, in the meantime, let me know how you are all going on, I won’t unsubscribe.

Thanks for the Guys invite, just don’t think I am strong enough at the mo, just need to have some fun with the kids and some holidays.

Really hope you have fun on your hols, we are doing Peppa pig world at Easter, Vilamoura June and a fab villa with pool in Nice in August.

We are living the life lovely and long may it continue!

Thank you for caring xxx

ShropshireJo profile image
ShropshireJo

I can understand how you feel. It’s been a heartbreaking few weeks. Sending love and very best wishes Jo xx

Caroles1 profile image
Caroles1 in reply to ShropshireJo

Thanks Jo, all the best to youxx

Lindaura profile image
Lindaura

Dear Carole,

I guess we all can relate, especially as this has been such a heartbreaking week after a heartbreaking month and a pretty sad year.

I have only been on here for a year and a half, but have found the group really helpful, when I have needed advice about treatment options and side effects.

Then, as I became more knowledgeable myself, it has been gratifying to be able to offer advice and insights to others.

We all know how stunned and basically ignorant we were before our diagnosis, so it is kind of nice, after finding so much support on this forum, to be able to give something back.

I am still in the ongoing treatment phase, so I will be sticking around for a while.

As I have healed so much this year, it hurts doubly that we have lost so many amazing women.

But we fight on.

I wish you all the best,

Laura

Caroles1 profile image
Caroles1 in reply to Lindaura

Thanks Laura,

Am overwhelmed at the ladies response, so I am determined to take a break, but not unsubscribe.

I am very sad as we all are, but will pop back in a few months.

I just wish all the best for you, you are all amazing

Cxxx

OC1985 profile image
OC1985

Wishing you all the best! Enjoy life, get out and laugh, find new places to visit. 💋

Caroles1 profile image
Caroles1 in reply to OC1985

Thanks Hun xx

Maus123 profile image
Maus123

Take care and all the best, Carole.

Caroles1 profile image
Caroles1 in reply to Maus123

All the best

Cxx

Rlenesue profile image
Rlenesue

Totally get it. Good luck, lovely lady

Caroles1 profile image
Caroles1 in reply to Rlenesue

Thank you lovely xx

Juleswhee profile image
Juleswhee

I understand your decision completely , the names that have gone have become so close to us despite in most cases never having met .Go and live your life and have some fun , we will still be here if you want to pop back .xxx

Caroles1 profile image
Caroles1 in reply to Juleswhee

I am determined to pop back, just need to take a break for themo.

Cxxx

JayGeeCee profile image
JayGeeCee

Completely understand how you feel. Every time we lose an amazing lady I am reminded of the spectre their waits in the shadows and it is hard to feel positive. I think LA’s passing has hit us all hard.

Enjoy your life and take care.

Joy x🌈

Caroles1 profile image
Caroles1 in reply to JayGeeCee

I think it has Joy, it has been mounting in me for a long time, 3 1/2 years worth, LA was too much, we have been

In contact for a while and although you you don’t meet someone, doesn’t mean you don’t feel for someone.

Wish you the best xx

max2244 profile image
max2244

Caroles1 ...please when you are ready come back. Not all of us write on the site but roughly 95 -100% of people read the posts. Most of the time we are scared to respond for fear of rejection or making, stating a point that’s misconstrued as either rude, selfish or just plain ignorant.

Yourself and the friends you lost, they provided us (and you still do) an insight to the warmth strangers give - a community of sisters, brothers, husbands, daughters, sons and extended families. Grief is hard but the hardest decision many people make is sharing their knowledge and life experiences for the better of others. This site is the best of humanity, a rainbow of different credes, a force of unquestioned support, a rejector if binding governmental red tape and a fighting force of knowledge.

You said making new friends would be painful, you already had them- the unresponsive readers of your posts, your friends posts. The quiet prayers of love and support, the tears for the passing of a unknown stranger. We are here in the background, unannounced but present, uninitiated but very much a part of the structure. We are silent but we stand with you!

For me, my final belief is God bless you whatever decision you make, may your steps be on solid ground and may you find laughter, tears and joy fitering throughout your life - a rainbow of hope, love.

All the best,

Max

Hopefulgal1 profile image
Hopefulgal1 in reply to max2244

As one of the ladies who may have sadly contributed towards this decision ( I am having such a hard time right now) all I can say is - this post of your is beautiful. The kindness of these people who take time out to advise or just send hugs has the most incredible power to keep me going. And it proves how wonderful humanity can truly be. Please keep being here .. I so hope I don’t put anyone else off xxxxx

max2244 profile image
max2244 in reply to Hopefulgal1

Hopefulgal1,

You would not put people off...your honesty is a step, a foundation stone that allows us all to accept our humanity. Never doubt yourself and take the time you need for you ...anyone can judge but the most important critic (the real self), is you - try giving yourself space, concentrate on spreading hope and sharing more ..you are helping the unseen women, men and family members not brave enough to write the words ‘I’m struggling’ ...the words you have written will have given more hope and help than you would ever be able to measure!

Caroles1 profile image
Caroles1 in reply to Hopefulgal1

You don’t put me off lovely,

Just sometimes the losses get too much! You are not one of them and nor am I!

I have just decided now to take a step back, but not unsubscribe.

There are loads of lovely ladies on here to help and guide you and new relationships to be forged.

I am well and feel I need to hand over to chosen people that you feel comfortable speaking with.

There are certain types you may want to avoid, but I leave that to you?

Regards,

Cxx😬

Hopefulgal1 profile image
Hopefulgal1 in reply to Caroles1

I totally get it and send you love and sure you need a break from it sometimes. Glad you’re honest and I’m sure so many people have been helped by you too in the past! Enjoy your life wherever it takes you x

Yoshbosh profile image
Yoshbosh in reply to max2244

Max, please never be afraid to respond to a post. Hopefully you will have seen that no one is rejected for offering their input, and it is so, so rare for anyone’s contribution to be misunderstood. That’s why I love this page so much. I find on platforms like Facebook people are pretty much looking for an argument, but that doesn’t happen here 😊

Your words to Carole are a perfect example of a perfect contribution. Thank you xx

max2244 profile image
max2244 in reply to Yoshbosh

Yoshbosh,

Thank you for your kind words and support , it means a lot - I don’t reply as much as I’d like as I am severe sight impaired- but - after reading the comments - I recon a few misspelled words and blanks will be overlooked ...thank you for be inspiration in responding to my post!

All the best,

Mac

Caroles1 profile image
Caroles1 in reply to Yoshbosh

Thanks Hun,

I have just decided to step back now but not unsubscribe, I just feel sad all the time and the tin lid was LA

Wish you lots of love ........I will be back 😘

Caroles1 profile image
Caroles1 in reply to max2244

Thank you Max,

Just taking a step back I think now and need to re group, not un subscribing, just taking time to enjoy life

C

triplets profile image
triplets

You will be missed, but I also understand. Sometimes you need to step back,take a break for yourself. We all need to do that at times. Just look after yourself, make your days happy.....for us! Much love xx

Caroles1 profile image
Caroles1 in reply to triplets

Thanks Hun.

Hope you are enjoying life too😘

LittleSan profile image
LittleSan

Hi Carole, I take breaks from here too when it gets overwhelming. It's perfectly unstandable, it's high energy, high emotion and scientifically complex. Enough to scramble anyone's brain. I'm on the verge of taking a break on the run up to starting chemo again. I'm struggling with losses to this damned disease on and off this site and I need some headspace to enjoy my family and beautify my house before the onslaught. The traffic is very busy on the site and its difficult to be supportive all the time when you need the energy for yourself.

Go recharge you batteries, live life to the full and pop in if you have a query. All the very best to you Carole. 💐😘 Xx

Caroles1 profile image
Caroles1 in reply to LittleSan

Hi little san

You have just summed that up! Never felt it before, but so much sad news and it has just mounted up on me.

Was going to unsubscribe, but, can’t, I feel like an abandoment coming on.

I love everyone to bits, but LA going has just got to me.

At the moment I am ok, but I feel like I have to go at life full pelt to make sure I make the most of every minute.

So, I am just going to take a break and pop back in and put my 5 eggs in wether any

One wants it or not lol!,

Cxx

LittleSan profile image
LittleSan in reply to Caroles1

Haha, superb! Looking forward to your 5 Eggs worth! Xx

Lyndy profile image
Lyndy

Hi Carole

Wishing you well with your journey- I do understand how hard it can be to lose our old friends on here- taking time away is the right thing for you. We will be here if ever you want to drop in... sending you a big hug 😘

Caroles1 profile image
Caroles1 in reply to Lyndy

Thanks Lyndy

Can’t quite disappear, after all the posts, will just take a break, need to re charge the batteries

Cxx

TarbonNZ profile image
TarbonNZ

I too am struggling with the ongoing grief from when another person falls. I have been feeling quite down and depressed, and need to pull myself out of it and focus on my health. Lily Anne was the straw that broke the camel’s back for me. All I can think of is the pain and suffering our sisters go through when the end is near, and it makes me very frightened for myself, and how I will cope. I have just come out of treatment for a recurrence, and while it has been pushed back again, I live with the fear that it will surely come back. I too have been considering having a break, not from you lovely ladies, but from the ongoing despair I feel. I love and respect you all, and I will be back, I just need a break to regroup and feel calm again. love Therese

Caroles1 profile image
Caroles1 in reply to TarbonNZ

Hi Therese,

I don’t want to break from the ladies either, just the losses, pain and suffering that I can’t do anything about.

I know where you are coming from, but, I find keeping myself busy so I don’t have time to dwell.

No one would blame you for getting on with life, me, I just feel I need to put it on the back burner, let others form relationships and maybe pop back in if anyone needs me.

In the meantime, enjoy life.......what do you have to lose? Xxx

izzybruce profile image
izzybruce

Enjoy your life,and good health xxx

Caroles1 profile image
Caroles1 in reply to izzybruce

😘

Coldethyl profile image
Coldethyl

Goodbye and good luck - enjoy your life outside of ovarian c x

Caroles1 profile image
Caroles1 in reply to Coldethyl

😘

Katmal-UK profile image
Katmal-UK

Hi Carole. Sorry to see you leave the site but TOTALLY get where you are coming from. I sometimes wonder why I stick around. I wish you nothing but the very best for the future. Kathy xx

Caroles1 profile image
Caroles1 in reply to Katmal-UK

You stick around Kathy because you are someone we look up to 😀

I was going to go,but, have decided to have a break and not unsubscribe.

I think the ladies need success stories like you, you are still here and a goal that can be achieved.

You have helped get me through, I am 5 years NED on 1st Sept and am going to have a fabulous celebration (if I reach it).

However,LA, has hit me hard and I feel I need to re group, I know you will know how I feel

Keep going on,

Love C xx

Cheryl4677 profile image
Cheryl4677

I understand exactly how you feel. The recent series of sad news has affected me far more than I would have imagined. I’ve cried for people I only know from this forum and it’s hard to take as it makes you think of your own mortality. I need to keep positive and concentrate on myself and my family. I might also need to come off for a while to help me keep focus. Wishing everyone well and I’m sure i’ll need to pop in from time to time. Take care Carol.

Cheryl

Caroles1 profile image
Caroles1 in reply to Cheryl4677

Hi Cheryl,

That’s how I feel, I don’t post often and not to be dramatic, but this has built up for a long time and LA passing that I have known (but not met) for nearly 4 years has finally got to me.

I think I just need to step back for a while, not unsubscribe as I first thought, but let you other lovelies give advice xx

Cropcrop profile image
Cropcrop

Totally understand how you feel, we have had such sad news recently and we are all affected by the loss of our lovely ladies.

I wish you all that you would wish for yourself and all your family and friends. We will miss you and should you ever need us we’ll be here for you.

Have a happy and healthy life lovely, hugs and love ❤️Xx Jane

Caroles1 profile image
Caroles1 in reply to Cropcrop

I know lovely,

I won’t be far away,

Thanks

Cxx

ellseybellsey profile image
ellseybellsey

Totally understand I am feeling the same, I have been positive all the way through this last 3 years but the sad news lately has given me some emotional tearful days.

I will stay on this site as these past few months have been difficult, and without the support I’ve received from the ladies on this site I would be in a much darker place.

Enjoy living your life, you deserve that.

Ellsey xx

Caroles1 profile image
Caroles1 in reply to ellseybellsey

Hi lovely,

I will stay on the site, but step back, it is very sad but we have to get a life balance, get well and enjoy our time.

I am devastated by our losses, have been on here 3 1/2 years and they are many losses.

It just hit me when LA went, here from me right from the beginning and so many more.

I won’t unsubscribe as I was going to, but I will love the newbies to forge relationships as meaningful as I know I have had

Cxx

Hopefulgal1 profile image
Hopefulgal1

Good luck Carol in your life and wish you well. It is heartbreaking to see these posts but right now I’m so glad some are staying - I’m so appreciative as I’m sure many have been to you too in the past - do

Go and enjoy some uplifting happy times..

Caroles1 profile image
Caroles1 in reply to Hopefulgal1

Thanks Hun,

Will still be around in the background

Cxx

Harrygirl profile image
Harrygirl

Thank you for all your kindness and support. While I have only been here 1 year, the last few months have been so sad, I really understand your needing a break. I hope you have many lovely times with your family and enjoy new adventures. 💐💗

Big hugs,

Christine x

Caroles1 profile image
Caroles1 in reply to Harrygirl

Thanks Christine,

You will be fine, lots of lovely ladies on this site

Cxx

Serengeti profile image
Serengeti

Hi dear

Totally understand how you feel

I wanted to help in a cancer hospital but my Drs and my friend who runs the hospital told me not to.

We have to focus on life outside this horrible disease sometimes.

All the best

I also want to log out sometimes but it’s also very informative and helpful

Xxx

Caroles1 profile image
Caroles1 in reply to Serengeti

Thanks

Cxx

LoyalVet profile image
LoyalVet

I rarely write, but read everyday. I also follow several Facebook pages on the same topic. My husband read one of the sadder posts on FB the other day and asked me if I should be reading them. I'm a realist and know well what I have (metastatic clear cell...currently NED). I'll be staying connected for now because I learn so much from you ladies. I'll echo the thanks for your insightful wisdom and wish you well.

Hi Carole. I completely understand. We’ve lots so many great women. I’ve started to dread looking at this forum some days in case we lose any more. Thanks for all your contributions. You’ve done so well! Keep it up! 🤗

Caroles1 profile image
Caroles1 in reply to

If it gets too much, just focus on your own case, since what is happening to others, isn’t what is happening to you.

It has what has got me through, this disease is not an “all size fits all”.I was only 1c (great) but had ascites and was given only 2 weeks to live, but with de baulking op and 6 months Chemo am still here 4 years NED.

It’s a rock and a hard place, you want support, but it’s hard finding out what is happening to others.

I have just decided to take a break, because sometimes it is too hard to bear

Cxx

luluw profile image
luluw

I was only thinking today that I wouldn't have got through the last 3 years without the advice and support from this forum. You have been one of those lovely women who have got me through. I understand how you feel. I just want to thank you and wish you happiness.

Lou xxx

Caroles1 profile image
Caroles1 in reply to luluw

Oh Lou,

That is lovely,

There are so many ladies still here to help,

I was going to unsubscribe, but, I won’t, just take a back step and let the others get on.

Still here if anyone needs me

Cxx

Wishing you all the best Carole. 💐

best wishes Jennyx

Caroles1 profile image
Caroles1 in reply to

Thanks Jenny xx

ZenaJ profile image
ZenaJ

I agree Carole, it's so sad. I keep thinking of Lily-Anne and have had a few tears. I keep wondering how much longer I can go on with so many of our dear teal friends leaving us. I feel guiltier every day.

I wish you all the very best of luck and happiness. You know you'll always be welcome back.

All my love, Zena xx

Caroles1 profile image
Caroles1 in reply to ZenaJ

You probably feel like me (survivors guilt) there is such a thing !

I am beyond sad for all the ladies that have left us, but LA did it for me.

I was going to leave completely, but have been overwhelmed by the contact, so, will just take a back step since I think new relationships need to be forged.

I don’t think I will ever leave, thought I could, just need a break,

Keep in touch,

Cxx

ZenaJ profile image
ZenaJ in reply to Caroles1

Will do Carole, it was the same for me with Lily-Anne. I can't stop thinking about her. xx

marylondon profile image
marylondon

Sending you love and complete understanding. It has been too heartbreaking on the Forum recently.. Enjoy your lovely grandchildren & immerse yourself in nurturing & fun times .

Xx

Caroles1 profile image
Caroles1 in reply to marylondon

😘

wendydee profile image
wendydee

Dear Carole,

You've sometimes got to just pull back and look after yourself. I've been on this group since the very beginning and there are lots of us on here who are still here, still raising awareness, supporting others and feeling well. We maybe need to be more vocal as a counterbalance.

It's the nature of things with OC, that some of our friends don't make it. I keep them in my mind and my heart, miss them but feel I'll keep on, when real life permits, banging the drum about OC, better treatment, faster diagnosis and all that stuff.

I've taken lots of breaks from this site, I dip in and out. If I feel I can help anytime, I'll speak up.

It's fine to do that. Sometimes our own families or friends need us and we sometimes need to just hunker down and look after ourselves.

Take care

Love Wendy xx

Caroles1 profile image
Caroles1 in reply to wendydee

Hi Wendy,

I am so glad you are still doing well. Ithink the long survivors need to band together to let joiners know a positive outcome can be achieved.(5 years and above)

Also (gates have been opened) I am so sick of it being supposedly our awareness month which seems to been hijacked by every women’s cancer awareness and any other thing, but not us.......why?

I will dip and out like you from now

Regards,

Cxx

Alifit profile image
Alifit

Hi Carole, I absolutely agree with all the positive comments already posted. Best wishes to you and your family and good luck in all you do.

Lots of love Ali x

Caroles1 profile image
Caroles1

Thank you hunny,

Grandchildren are mad but gorgeous! Xx

Vicx1977 profile image
Vicx1977

Big hugs caroles1, as a newbie I love reading your honest, heartfelt replies. Give yourself time as you've certainly been through a lot lately and hopefully we will all see you back here when you are ready xx

Caroles1 profile image
Caroles1 in reply to Vicx1977

😘

Grace123 profile image
Grace123

Just wanted to echo what others here have said about understanding where you're at just now & gratitude for all your kindness and posts. Wishing you and your family a rejuvenating time xxx Sundra

Caroles1 profile image
Caroles1 in reply to Grace123

😘

JulieP1986 profile image
JulieP1986

I am so sorry you have experienced one too many good byes on this wonderful forum. You wonderful long term ladies have been such great sources of guidance and information to so many of us. Enjoy life and have no regrets. Sending virtual hugs and positive good wishes. xx

Caroles1 profile image
Caroles1

😘

Artgreen profile image
Artgreen

I can’t add anything that hasn’t been said already, but totally understand the need for a break. I’m still fairly new to it all and need them already as I try to process all the information. Self care and time to relax and meditate to make the most of our lives are important.

Hugs

Alex x

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