Anyone heard from Kryssy? : Has anyone heard from... - My Ovacome

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Anyone heard from Kryssy?

CallmeMum profile image
41 Replies

Has anyone heard from Kryssy recently? I noticed she’s not been here lately xxxx

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CallmeMum profile image
CallmeMum
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41 Replies
Yoshbosh profile image
Yoshbosh

No, I was also wondering. It’s been a couple of weeks since she replied to a post, I think?

Lily-Anne profile image
Lily-Anne

I’m in touch with Kryssy. She’s just taking a short break from HU. I guess like the rest of us sometimes OC and life takes over. I will tell her that you’ve asked though

LA xx

CallmeMum profile image
CallmeMum in reply toLily-Anne

Thanks my sweetie was worried about her that’s all! How are you? Not long now till Sarah Millican is it? Xxx

Lily-Anne profile image
Lily-Anne in reply toCallmeMum

Not my best day. Still recovering from leaving the house Thursday! Got a scan in the morning and really don’t want to go

Xx

CallmeMum profile image
CallmeMum in reply toLily-Anne

Oh no! Hopefully you’ll feel as well as you can soon enough! Hopefully the scan will also show you as stable. Keep us updated with your scan and results xxx

Hi Callmemum, I spoke to Kryssy,she is just having a break she had a bad week and needed a total relaxation time.

I hope you and your special person are ok ..take care Lorraine xx

CallmeMum profile image
CallmeMum in reply tolorraine71-Australia

Hey sweetie,

Thanks for letting me know. My special person is all good at the moment she is dormant again and her next appointment is in December. How are you? Xxx

Hi Callmemum, Glad she is doing well I"M ok I've not had any treatment for a few months now and being off treatment has it's good and bad side the bad side is I have found a lunp in my side and a bit a pain but feeling better being of treatment, I"ve got appointment with he palliative care DR to morrow, so will see where we go for now.Take care Lorraine xx

Perthgirl profile image
Perthgirl in reply tolorraine71-Australia

Thinking of you Lorraine and Kryssy 🌹🌹

lorraine71-Australia profile image
lorraine71-Australia in reply toPerthgirl

Thank you ..Lorraine xx💙💙

Kryssy profile image
Kryssy

It's me. Yes, I'm in a terrible place so not the best company. I came off the medications which I'd had in hospital, one of which was prednisilone, and had three weeks of agonising headaches because of withdrawal symptoms. Couldn't sleep, kept vomiting etc etc lost weight. I'm now on morphine patches which have brought the pain from a 10 down to a 3 and I'm taking just one a day to wean off. Someone should have told me. Also, the shingles I've had for 7 months and is spreading across my back isn't shingles after all, despite three oncologists and the GP saying it was not cancer. It is cancer and is having a field day. I'm seeing my oncologist tomorrow for an emergency talk as something has gone very wrong. I am so upset that it's impossible to go out of the house, can't speak to anyone on the phone and just want to curl up and die. Sorry to have been so quiet but I can't face anything just now. I hope you understand. Perhaps I'll feel a bit more like my old self tomorrow, but I doubt it. I feel so let down.

Love to all of you.

Kryssy xxxxx

Yoshbosh profile image
Yoshbosh in reply toKryssy

S**t, Kryssy 😔 You think the medical professionals know what they are talking about, then that happens. We’re all here for you, whenever you are ready. Vicki xxx

Mrs_Atko profile image
Mrs_Atko in reply toKryssy

Sending much love Kryssy...that all sounds bloody terrible. You have such enormous strength but I’m sending some more over the airwaves xx

CallmeMum profile image
CallmeMum in reply toKryssy

Oh my god! How the f**k could they have missed that! You don’t have to be sorry at all I was just worried about you that’s all! I’m pleased the pain is down, I suppose that’s the only bonus. I completely understand where you’re coming from! I really hope you can get something sorted and get a treatment plan in place. If you need absolutely anything at all you know where I am, I have a passport so it’s not impossible to get to France either xxx

ZenaJ profile image
ZenaJ in reply toKryssy

It's awful. I can't find the words of comfort I'd like to give you. Just rant your feeling on here and we'll all listen. A big hug. Zena xx

Cropcrop profile image
Cropcrop in reply toKryssy

I’m so sorry you’re having to deal with all this on top of everything else lovely lady, draw from your amazing strength and we’re all here for you if you want to rant and support you 100%. Much love and hugs ❤️Jane

ellseybellsey profile image
ellseybellsey in reply toKryssy

Kryssy

I am sending you virtual hugs, I am in total shock that they missed this.

Always here sending all my love.

Ellsey xx

harpist_UK profile image
harpist_UK in reply toKryssy

So sorry, Kryssy. Love and hugs. I also have the thing they once thought was shingles. It is to do with the lymph gathering and causing blisters and pushing through the skin. Very easily misdiagnosed. People ought to be aware of it.

kristinaapril profile image
kristinaapril in reply toKryssy

How the hell does 4 professionals miss that?! Sending you much love and a virtual hug. ❤️Xx

MostlyHarmless profile image
MostlyHarmless in reply toKryssy

Oh ffs, you'd think one of them would have picked it up. I've never met you but your posts have helped me so much. I hope they can sort something out for you. Gentle hugs.

in reply toKryssy

Sending you a gentle hug, so sorry things are wrong for you right now. Hope the meeting with your team has a good outcome,

Maus123 profile image
Maus123 in reply toKryssy

Hugs, warm thoughts, more hugs! Maus

Manchesterlady profile image
Manchesterlady in reply toKryssy

So sorry to hear this Krissy, I hope your team can come up with some answers. You are a wonderful supportive lady. Sending love and hugs.

Sheila xxx

Hertsmum profile image
Hertsmum in reply toKryssy

Dearest Kryssy

Sent you an email but you may not be reading those so just wanted to add my gentle hugs and support on this thread, totally shocked at this news and thinking of you a lot. Please stay strong and keep fighting this beast. No need to reply but here when you need. I’m hoping to go home from hospital on Thursday.

Love and all the positive vibes I can muster

Madeline xxxxx

January-2016-UK profile image
January-2016-UK in reply toKryssy

Harpist has it as well so hopefully now it has been properly diagnosed it can be sorted. Hope you get the meds sorted and you're your old self soon.

Mopsie profile image
Mopsie in reply toKryssy

Dear Kryssy

What the heck are these people playing at? Surely oncologists must know what's going on when the shingles did not clear up as expected and is now spreading. I feel cross for you that no one told you about the effects of coming off the drug and not preparing you for what might happen. Hoping that you will get some answers as to what they can do to get you back on track and out of pain. We all miss your humour and wise advice.

Hugs and love to you

Maureen xx

BeeWild profile image
BeeWild in reply toKryssy

OMG all I can say is what the feck!!!

You are more than entitled to go into hibernating ostrich mode sweetie you’ve had a bloody shitty time with everything xx

But if you feel you want to stretch your neck out of the sand when you’re in a better place, please do and we shall all be here to clap and cheer as you are such a well respected, funny and kind member of this amazing group xx

Sending you the biggest warmest hug that’s possible in this virtual world and if you need anything you know to just ask and it shall be done xx Hit squad for bloody stupid doctors included xx

Much love and hugs

Bev xx

Juleswhee profile image
Juleswhee

Sending you the love and support you always send us xx

ZenaJ profile image
ZenaJ

No I've been worrying. I haven't heard from Lily-Ann either. xx

Hanneesweedie profile image
Hanneesweedie in reply toZenaJ

Lily-Anne replied to the thread further up I think 😊

ZenaJ profile image
ZenaJ in reply toHanneesweedie

Thanks. I really should read messages before I answer instead of after. xx

ShropshireJo profile image
ShropshireJo

So sorry you’re having such an awful time, sending you love and gentle hugs Kryssy. Jo 🌺🌼🌸🌻🌹🌺🌼🌸🌻🌹

Maxjor profile image
Maxjor

So sorry Kryssy--sounds so hard. Don't want you to feel any obligation to reply to any posts so sending a giant hug and hoping you feel better tomorrow. oxoxoxoxo

Bubbles-1 profile image
Bubbles-1

Sending you much love Kryssy, hoping the team come up with a plan that helps you.

Michelle ❤️💐Xxx

Coldethyl profile image
Coldethyl

Thinking of you Kryssy - we put our trust in our team because we have no other choice but sadly mistakes get made and we bear the brunt of them - I hope that you can regroup and find a way forward that helps you come to terms with what has happened and to find something that gives you some respite from all the crap that is going on xxc

dryden1 profile image
dryden1

Dearest Kryssy, ,sO,SO sorry that you having to face all this. MY HEART goes out to you, my thought are with you. .Love Chris

LittleSan profile image
LittleSan

Much love and strength to you Kryssy. Xxxx

kat98116 profile image
kat98116

Oh Kryssy so sorry. Big hugs and healing thoughts from across the pond.

Guds profile image
Guds

Thinking of you Kryssy. Sending you tight hugs luv. 💪 Fight it out.

Katiebairdie profile image
Katiebairdie

I’m so very sorry to hear you are feeling so poorly and low. Thinking good wishes to you.

cathy46 profile image
cathy46

Sending lots of love 💕Kryssy

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