Complex cyst

[Mguilfo]

Hi All, it’s been a while since I last posted. My CA-125 was elevated again at 68 in July and a recent CT scan has shown a 4 cm complex ovarian cyst. I had a 2.8 cm simple septated cyst Sept 2017 which had collapsed at the follow up scan 6 weeks later. I am being referred to a gynae oncologist now. I also have a history of endometriosis. I have pelvic pain, bloating and a very heavy feeling in my lower tummy when I stand for a while. Do complex cysts always need surgery?

[Neona]

I had complex cysts when diagnosed - I think they may be considered to be suspicious but don't take my word on this as I don't really know. I was diagnosed with clear cell which can develop from endometriosis although I have not suffered from endometriosis to my knowledge. I did not have any pain or bloating- just mild nausea. Cysts are quite common and ovarian cancer is rare so please don't think the worst but do get checked out.

[Mguilfo in reply to Neona]

Thanks so much for your advice. Was your CA-125 elevated as well? I am 46 and still premenopausal? My highest CA-125 was 98. My energy levels are low as well and I have hip pain on that side as well.

Hopefully I won’t be waiting too long to see the gynae oncologist.

[Neona in reply to Mguilfo]

Looking back my original symptom was fatigue. I also had a persistent pain in my neck. I had a blood test which showed severe anaemia. Then I got stiffness and pain in both thighs. My ca125 was 16. I was diagnosed with polymyalgia although my GP always thought I had cancer and didn't believe I had polymyalgia. 2 years later the nausea started and eventually I couldn't eat and was sent for a scan. They found bilateral complex cysts - one was 10 cm- and some ascites. I was diagnosed stage 3c clear cell. I was so unlucky that I had so few symptoms and my ca 125 was normal - even though I must have had the cancer for 2 years before diagnosis. My ca125 at diagnosis was 67.

[Mguilfo in reply to Neona]

Thanks Neona for all the information you sent in regarding your diagnosis.

I still haven’t received my appointment with the gynae oncologist. I might follow up on it on Monday. I had booked a trip to NewYork with my hubbie and 2 girls at Halloween. Hopefully any surgery will wait until after that. Sending you good wishes.

Maria