I am new and yr views apprec

[FloAnn63]

I am 63 years old suffering from ovarian cancer stage 3c High grade serrous

confirmed problem Jan 2017

Did 3 cycle of Paclitxel/carboplatin

then did major operation

Did another 3 cycle

------------

Had a relapse after 5 month.

was on another 6cycle of diff drug

Gemitabine/Cisplatin/Avastin

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Scan now show tumour halved CA125 44 was told to go for 7 and 8 cycle asked if I can go on oral tabs. onco say go on 30 min Avastin every 3 weeks and may consider hormonal tabs ?

Has anybody out in our community got this treatment. I am starting to think if I did the right thing in asking to go oral tabs ?

Flo Ann 63

[Lindaura]

Dear Flo,

I think you may need to get either another opinion, or simply arrange some sort of discussion with your Oncologist and your CNS Nurse.

Prepare yourself by researching the different alternatives offered to you.

Enlist a loved one or close friend to help you with research.

There is also an outside clinic called Care Oncology Clinic that offers inexpensive treatments that work alongside your regular treatment.

Your can google this by name.

Best of luck,

Laura

[FloAnn63 in reply to Lindaura]

Thank u Linda for your quick response.

[GoldenGourd]

Flow Ann I am about to start cisplatin gem. Do you think it has worked for you so far? I’m just wondering why you do not feel a 7th and 8th cycle would be right...? Did you find the cisplatin gem tolerable? I’m worried about it and would appreciate any advice you may have from your experience of it. As for oral tablets there are various treatments but I think it would be better for you to speak to one of the Ovacome nurses on the helpline, or to get another oncologist’s opinion.

You seem to have done well so far, hope you carry on.

Netti xx

[FloAnn63 in reply to GoldenGourd]

Hello Netti,

Cisplatin gem is tolerable. Go for it.

It is just that for me I am also on Statin 40mg also and I figure it may have make my knee muscle rather weak esp after finishing my 6 cycle. I feel so exhausted. I just worried if I keep on doing transfussion it keeps on killing all my good cells and bad cells and make me weaker. I find difficulty climbing overhead bridge

By the way I live in city of Singapore so no ovacome community nor nurses nor any ovarian group. I goggle all my info on the web.

[GoldenGourd in reply to FloAnn63]

We are your community Flo Ann. We are from everywhere and it doesn’t matter how near or far we are here for each other. XxNetti

[Hidden]

I stayed on Avastin for about 18months in total and it did keep me stable so yet I would recommend it

[FloAnn63]

noted Suzuki.

[1032]

Hi, I just finished almost a year of being Avastin after chemo. I had overian cancer stage 4 with secondary in my lung. Last CA 125 count was 6. I see oncologist tomorrow and find out what last CA125 tumour count is after off Avastin for 4 weeks.

I was lucky as Avastin just went on PBS list in Australia about a year or so before I went on it.

CA 125 at 44 is not bad, it’s getting down, Yahoooo.

[Hidden]

Hi Flo. My situation begins similar to yours. Diagnosed age 65 High grade 3C. 2 x ops. 1st remission lasted 18 months. Then chemo again for the usual 6 sessions: Carbo/Caelyx/Avastin. Straight into remission again but with Avastin continuing as maintenance - now for 3.5 years (3-weekly for 30 mins). Avastin has suited me very well to date. Minimal side effects. I had a port installed in my arm for the regular infusions. I'm fit and well. Hope that's a help. Best wishes. Pauline.

[FloAnn63]

On the 12 July when I see my onco for review. Will ask her re benefits of hormonal tablets (oral) which she has not given me yet as I know she will be continuing my (3 weekly 30 mins Avastin) Thank you Pauline66 for your feedback.

FloAnn63

[Neona]

I relapsed while on frontline chemo and was offered caelyx but I decided to pay for a consultation at the london clinic and am now on a phase one clinical trial. Your treatment seems to be working but this could be an option in the future. My oncologist didn't tell me about phase one trials so it seems you have to take things into your own hands sometimes.