Survival stories?

[nikki138]

Hello! Just wondering if anyone has an amazing survival story. I'm hoping to have my own one day!😊

[Lily-Anne]

Hi

We’re all survivors. Each day is the best story, or it is for me. Some are not quite the chapter I planned and some surpass it

Good luck with your tale of OC look forward to following it

LA xx

[Katmal-UK]

Hi Nikki, there are probably loads of survivors out there getting on with life, I am still here in my 11th year despite 2 recurrences. I wish you well on your journey xx

[Luci22 in reply to Katmal-UK]

Katmal - wow 11 years, that's amazing! Is there anything extra you have been doing for your health? I've seen various suggestions regarding diets, supplements, NSAIDs. Hoping and praying to see the same for my mom. Do you have a secret?

[Katmal-UK in reply to Luci22]

Hi Luci. No secret Im afraid just luck or genes, my mum had stage 3 OC and went about 14 years without recurrence before succumbing to a new primary. cancer. My dad had lung cancer and survived 32 years with no recurrence. I don't know why I have been so lucky x I wish your mum well x

[Luci22 in reply to Katmal-UK]

If only they could bottle luck and good genes! Good for you and I'm in awe of how well your parents did. Thanks for responding and the well wishes for my mom. Take good care.

[Hidden]

I hope so too.

If there is one thing I've learned from OC it is that we are all individuals, not statistics, and it is impossible to predict how things will pan out for each of us.

We just get on with it, with fingers and everything else crossed. (true for life in general too, of course!).

Wise words from L-A and Katmal as usual! xx

[Emsymits]

It was pointed out recently that there are survivors who no longer need Ovacome as much so do not post. (Something that hadn’t dawned on me.) Therefore there are more ladies like our wonderful Katmal who are still here many years after diagnosis. We just don’t hear about them as they are busy living their lives. 💪.

Em

X

[Sunfleury-UK in reply to Emsymits]

When I was diagnosed in 2012 I was really grateful to posters such as wendydee (a wonderful woman and now friend) who stayed on the board a long time after she was originally diagnosed and having remained NED... It had taken me a little while as Em says, to consider that many people would after treatment have less reason to continue to post.

Its one of the main reasons I made a conscious decision to keep reading and posting. I have been very fortunate to remain NED for over five years now... Sx

[wendydee in reply to Sunfleury-UK]

Thanks Sarah, only just seen this! I'm more than willing to help anyone I can. I made a conscious decision to help women in the same position as I am, in as many ways as I can. I don't drop in here as much as I used to. However, I'm chair of the Essex gynae Cancer support group, anyone can look on there. There's also an open Facebook and twitter link on there that anyone can follow. copescharity.co.uk

If you're in Essex, do drop in and see us! We have fab coffee mornings and cakes. All of us in the group have 'been there'.

[CallmeMum]

Hi lovely and welcome to the family.

You’re a survivor as you’re here today and that’s what it’s all about being here on the day and living for the day xxx

[Luci22]

Every day is definitely a blessing. I'm so grateful to see my mom doing well so far, after finishing her first line treatment. I too hope to see many long term survivors and wish you all lots of health, strength and courage.

[Nicky100]

There are loads on the Radical Remission website. I reccomfnx the book.Its awe inspiring.

This below is one of the stories on there. You can use the search facility to find more:

radicalremission.com/healin...

[Di16]

I was diagnosed 10 years ago & am still here, though dealing with a recurrence. But I have met a lady who was treated for ovarian cancer 27 years ago, & has never needed any further treatment. Di

[Orsolini]

I too was diagnosed 10 years ago, still having treatment but living life more or less normally. Good luck - Nicolax

[Zena41 in reply to Orsolini]

Hi are u still on the trial?

[Orsolini in reply to Zena41]

Yes but possibly not for much longer. Will let everyone know. Nicola

[Zena41 in reply to Orsolini]

Ok do they have something lined up for you ? Good to hear from u x

[IrishMollyO]

Hi Nikki

I was diagnosed with stage 3c inoperable Primary Peritoneal cancer in 2011 with a Ca125 count of 8000. Six months of Carboplatin/ Taxol brought me back to NED status( no evidence of disease ) and my CA125 at normal level. I remained disease free until 2016 when I had recurrence in my Lymph nodes . Again I was treated with chemo and this time Carboplatin only . Again it worked and I was pronounced stable by end of treatment.

Make no mistake I would not be here to tell my tale if I had not had chemotherapy. I am telling you this because I realise a previous post of yours said you were using natural methods. I’m not sure what alternative methods you have come across but they can never replace tried and tested scientific methods. By all means use then in conjunction with conventional medicine as long as you advise your oncologist. I would like to wish you all the best on your journey back to health,and I hope you have been boosted by those of us who are still around .

As for me I have been unlucky enough to be hit with a totally new cancer which is not related to my previous one. I am now at the Radiotherapy stage of treatment for breast cancer so I hope I can keep that one at bay too. Keep us posted on how you are doing . Take care

XXX

💚💕

[nikki138]

I'm doing natural treatments in conjunction with chemo and Avastin. Thank you all for sharing. It's the 12-18 month life expectancy that my oncologist gives me that is always in the back of my head. I just want to be here for my son. I don't feel like I'm dying and I'm young. Has anyone else's oncologist given you an expiration date? I wish he wouldn't do that!

[lorraine71-Australia]

Hi, Please do not take any notice of the used by date,I was told when I was diagnose that I would not see the year out, 3 1/2 years later I'm still here, my oncologist said that the statistics are so out of date people are living with cancer for a lot longer, with new treatments being trialed.

If that is his attitude maybe you need a second opinion with a more positive oncologist .. You will find a lot of ladies were giving the same advice and are still going Strong ..Take care Lorraine xx

[Lizchips]

Hi, Nikki, well diagnosed April 2014 with stage 3c ovarian cancer, still here no reoccurring cancer, I feel lucky and blessed. I'm always praying for everyone else to get there chance too.❤Liz

[linda49]

Hi nikki138

I’m one of those long term survivors who pops in here occasionally. I was diagnosed in 1996 so that’s 21 years ago. I had 8 cycles of carboplatin and have been in remission since completing that. Had a scare in 2011 when I was experiencing symptoms of bloating and feeling full but after thorough investigation, nothing was found.

Ovacome was in its infancy when I joined in 1997 and there was no Internet forum. There was a system of Fone Friends whereby members could be linked up and speak to others on the phone. How I would have loved this forum then!

I’m now 68 and a grandmother to 4 beautiful grandchildren.

I think that treatment has improved since my diagnosis and is now more likely to be tailored to the individual which has to be a good thing.

I think this forum offers all women living with ovarian cancer an amazing opportunity to share and support each other

Good luck to you all and keep on posting

With my best wishes

Linda

I

[nikki138]

Thank you everyone, that is encouraging.

[DanielleRice]

I'm reading the book called Radical Remission: Surviving Cancer Against All Odds, by Kelly Turner. It's very inspiring! It's also a bit sad to discover that the medical profession hides most cases of radical remission because they don't want to give those of us with cancer unrealistic hopes. But there are a significant number of radical remissions out there and I don't think hope is such a bad thing when fighting this monster!