Introducing Myself: I am Acceptance 1 from MA. I... - My Ovacome

My Ovacome

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Introducing Myself

Acceptance1 profile image
13 Replies

I am Acceptance 1 from MA. I am 65 and just got my first recurrence after about 6 months from frontline. Trying not to get discouraged. I am stage 4 but have heard hopeful stories of people living a longer life than what the darn statistics stay. I put my trust in God and my doctors and get stronger with all the support I have from those around me. I am blessed. There is always someone far worse.

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Acceptance1
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13 Replies
Seasun36-uk profile image
Seasun36-uk

Hi Acceptance 1, welcome to this forum. You will find invaluable advice, information & friendship here 🙂 The statistics are way out of date. All the best for any treatment coming up. Linda xx 🌺🌸

Irisisme profile image
Irisisme

Welcome Acceptance 1, you are amongst friends here. There are many who are beating the odds, no reason why you should not be one of them.

Iris XX

kristinaapril profile image
kristinaapril

Hi Acceptance 1, welcome to the forum though sorry that you needed to join us. As with Seasun stated, the statistics are outdated (the cohort sampled was from 2007). Also, ovarian cancer is very hard to consistently simulate progression in the petri dish; ie: every one's path is different. Wishing you all the best in future treatments.

Kris x.

Joanie12 profile image
Joanie12

Hi acceptance 1, wish we could have met at a more favourable place but hey, here we are!! I too am stage 4 and getting on with it. Luckily I have great family and friends and I too have the support of my faith, so good luck with everything, onwards and upwards,xx joanie

Katmal-UK profile image
Katmal-UK

Hi and welcometo the site. Dont bother with statistics, you arent a statistic, you are you. Im stage 3 in my 11th year xx Kathy xx

Cnmart profile image
Cnmart

Welcome to the site! Sorry to see you here, but you've found a wonderful community. 😊

lesleysage profile image
lesleysage

Hi Acceptance and welcome to where no-one would choose to come, but know you will find it a safe and positive place to ask questions, share being down, being joyful and simply just 'being full of llife' with all that brings.

Statistics: I suddenly realised at my second recurrence that statistics are history...they are data collected over the past 5 to 10 years and so that data is not about 'us', not about our here and now. So, as Katmal says, you aren't a statistic, you are you....in the here and now with new options (drugs and operations) being tried and trialled which can extend life and for some of us give far more years of survival than data collected over the past 5 to 10 years suggests. So, I hope my perspective nourishes your positive mind patterns as research certainly does show that keeping as physically active and mentally positive as we can, tends to correlate with longer remissions....and longer remissions and healthier bodies, according to my GP, means more options when the b----r returns.

Warm wishes for a good day. Lesley

thomas62 profile image
thomas62

HI Acceptance,

Welcome! Gwen xx

January-2016-UK profile image
January-2016-UK

Hello and welcome! Yes, as others say stats are out of date. Even recent five-year stats must relate to patients who started treatment well over five years ago, allowing for collating and presenting the data, etc. Lots of new treatments and trials now.

All the best!

Nancy222 profile image
Nancy222

Welcome!

As others have stated, the stats and studies simply can keep up with real time. There are so many variables that aren't factored in.

There's always new treatments coming out. What was valid five years ago might not be so valid today.

Big hug.

Madmarilyn profile image
Madmarilyn

Everyone is unique, each person reacts in their own way. It's great to know the stats are old, and that things are changing for the better every day.

I was told my type (GCT) was 80% likely not to recur, that if it did it would be two to ten years and that it was slow-growing - except it came back within six months and seems to be more aggressive than they expected. Basically, they know nothing, as they have too little data to give them solid information in my type, but I also figure they don't know me either, and am comforted by being unique! Good luck, keep smiling and come to us girls for a rant or to tell us good news as and when you need to! We are what works and for me, what helps, knowing there are solid examples of positivity, living with this damn thing and new survival rates which increase every day.

Ge0rg1na profile image
Ge0rg1na

Hi and welcome - a positive mind is a joy forever and sharing your concerns with total strangers on this site means you are having a break from burdening your friends and family. They, of course, all want to support you but it's my experience that it's the people who also have this beastly who fully understand what you're going through. So, think positive thoughts and get as much enjoyment from today as you can, especially with your friend and family xx

yo207 profile image
yo207

Hello Acceptance and welcome. I just started third round of treatment for third recurrence since my first diagnosis in 2012. I just want to share that I spoke to a woman who had been Stage 4 for 20 years now. Don’t believe the outdated stats out there. As you know, we all have a different story to tell and only God knows when it’s our time to be in his grace. Live your life for today, then tomorrow but Live! I will keep you in my thoughts.🙏

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