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Mucinous Cystadencarcinoma


I'm Catherine diagnosed with stage 1 Mucinous Cystadenacarcimoma in 1988. Massive tumour, so debulking followed by check ups for 5 years. Thankfully and very, very luckily disease free (so far!). Wish this amazing site had been around then. Such a terrifying and lonely place to be at diagnosis. Ironically I now live near the Christie and Marielouise is the name of a quiet little garden nearby, where I'd go when I feared 'the insidious monster' was back.

4 Replies

Hi Marielouse

I was diagnosised with Mucinous Cystadenacarcimoma (stage 3) in Feb. 2017, had a complete hysterectomy March 2017. Woke up one morning with a hugh lump in my belly. Never had any pain, never had any signs. I am doing fine right now. No chemo just Celecoxib 200 mg twice a day. My only complaint is the mucin in my belly, there is no way that that can be removed. Are you experiencing this problem? I would be very interested to know if you had chemo? I not what treatment did you have. Glad to see your post.

Good luck, Jeri (11209)


Sorry, that should have been addressed to Catherine not Marielouse.



Hi Jeri,

Similarly to you, no obvious symptoms (apart from the massive lump in my abdomen which I only became aware of when the GP out her hand on it! And I'm only 8.5 stone So it was hardly hidden!) Felt such a fool and when I looked back I realize I was becoming very, very tired and needing to go to the loo alot more (the latter the only symptom which took me to see her in the first place thinking I must have a urine infection. If only!!!). But the big lump aside, fairly innocent sounding symptons (but sinister as it turned out) but no I didn't get mucin and I'm sorry that nothing can be done for yours?

My only subsequent issues were discomfort from adhesions which if course I thought was the return of my tumour and bad headaches (the latter I could only put down to HRT).

Again, like you no chemo, tho a later medic said he might have given me some. But I've since learned that our type of rare tumour doesn't respond to it.

Wishing you all the years of recovery I have had and more. Interested to know if you are on HRT? They took mine away after 20 years!

Love Catherine x


Good morning Catherine

I too am very small - I only weight 110 lbs. (don't know how many stones that would be). Always had a very flat tummy, even after five children. Rolled over one morning and noticed this hughed lump in my belly. I immediately went to the doctor from then on it was Cat Scans, sonograms, blood tests and then a complete hysterectomy.

Had absolutely no sign of anything wrong until the lump. I am 6 months since the operation. No. Pain, in good health. My only complaint is the mucin. Do you know anything about mucin? Does it keep growing?

I am not on HRT, already through menopause. The only thing I am on is Celecoxib 200mg twice a day. It is a Cox2-inhibitor.

Very interesting article from the Moffitt Cancer Center website, in Tampa, Florida on Cox2-inhibitors.

Thanks for getting back to me. Your story gives me hope.

Thanks again,



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