Feeling worried due to high ca125 level. - My Ovacome

My Ovacome

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Feeling worried due to high ca125 level.

Hacke82 profile image
6 Replies

Hi ladies, i have been reading through all your posts and find you all such a support . Although I have not been diagnosed with anything yet I am still in the early stages of tests I am really struggling with keeping my nerves and anxiety at bay . I visited gp due to irregular periods , pelvic pain , bloating . I had my bloods taken and the ca125 level was 62 . That's literally sent me into a spiral of anxiety and worry , I have my scan Friday and am so worried what this will show as there is obviously something not right and the thought of having to wait over the weekend for answers doesn't help . It's the not knowing that I'm finding so hard . Thanks for listening kelly x

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Hacke82 profile image
Hacke82
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6 Replies
HogwartsDK profile image
HogwartsDK

Hey Kelly and welcome to our friendship forum! I am glad you found it and I sincerely hope you won't need us after the results of your tests!

I remember the waiting as if it was yesterday and it was actually around this time 2 years ago! More often than not it is not anything sinister and all the worrying is for nothing but that doesn't stop you from worrying! There are many things that can raise the CA125 so try not to worry but as I said that is a lot easier said than done!

Best of luck with the scan on Friday! Hopefully it's nothing sinister and keep us all posted! This forum was my rock during diagnosis and treatment and even to this day!

Have everything crossed for Ya!

Dx

Cropcrop profile image
Cropcrop

Hi Kelly, welcome to our gang 😊 We're a lovely bunch and are all here to help.

The waiting is difficult but you'll soon be there and you'll know just what's going on and can deal with it. I found that once I had my diagnosis I felt a little better as I then knew just what was going on and it had been given a name and an action plan was put in place and we could move forward.

Good luck on Friday, it can take a little while for the results to come back as the medical teams usually have meetings to discuss your results and formulate a plan before coming back to you but pleased be reassured that you will be in good hands.

I hope your scan show nothing sinister and that there's a simple answer but if the little nasties are there we're all here for you and somebody will have just the answers you need.

Take lots of care and keep us up to speed, big hugs ❤️Xx Jane

Marieloiuse profile image
Marieloiuse

Although my brush with OC was nearly 30 years ago, those waiting days waiting for a diagnosis were hell. I thought I was going mad! Made even worse by the the fact that it was a lovely August and everyone else was going on with their lives and I was waiting for the feared news that could/would change my life forever. So I can empathise totally. I was almost relieved in the end find out what I had to deal with in (stage 1 mucinous carcinoma). But hopefully for you, this is all academic and you'll be able to resume your life. Your symptoms could indicate lots of things. All the best for tomorrow. Catherine x

Hacke82 profile image
Hacke82

Thank you all for getting back to me . I'm trying my best to keep calm and keeping everything crossed it's nothing horrible . Really appreciate all the support x

Rlenesue profile image
Rlenesue

The waiting is tough. The worst part but try to keep positive

Rlenesue profile image
Rlenesue

My Ca125 was at 677 last time blood work was done and there is still no symptoms of disease and ct scans are clear. Try not to worry

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