To all you wonderful ladies:
Hi everyone. I was diagnosed in July of 16--Stage 4A high grade serous ovarian. BRCA II. Finished first line chemo (carbo/taxol) while in a PARP double blind clinical trial, December. Stayed on the PARP (much higher dose when done with chemo--felt nothing, no reaction and bloods stayed the same) since. Yesterday, found out my ca125 is going up fairly quickly and is at 73 from 15 the test prior. 15 was up from 8. My trend is confirmed. I see my surgeon and my oncologist (a immunotherapist as well as medical oncologist) next week. I am at MSK.
Question: Do you put all your faith in what they say to do or do you ask questions about other treatments and "push" something you may want more? I do not think I am on the PARP inhibitor and would much prefer to do that over chemo again so soon.
What have you or would you ask? For those of you who had your first relapse--what treatment did you do? And how did it go??? Considering it was only 7 months of no treatment I am worried it may mean I won't be able to reach remission again. I am a ball of tears!!!!! Trying NOT to cry in front of my family but just feel like crawling up into a hole, and bawling. Need my OC sisters input. Thank you!