Iv just posted about my operation news which I have no choice in having, otherwise well it isn't worth considering, but also yesterday my older sister had her BRCA gene test result and she is BRCA 1 positive.
I couldn't stop crying about it. I feel bad enough suffering with this disease and now potentially she is at much higher risk?
I just can't get my head round it, I really don't want her to have to deal with any of this.
My younger sister was BRCA negative a few months ago which we celebrated and I had told myself my older sister would be the same.
I am BRCA 1 positive but as I already have cancer it didn't effect me as much.
My daughter has her test at the end of the month and I feel so horrible that I may have given her the gene. It is only 50/50 chance but It's a horrible gift to pass on.
My nephew will now be tested too as he may carry the gene and it's not unheard of for males to get breast cancer, but it also increases I believe prostate cancer.
I know the option for more regular testing is good but the thought of having a bilateral mastectomy for both of us is just so daunting. There won't be much of me left soon if I elect to have it done.
Has anyone else any experience of the BRCA gene and had surgery or decided to take the route of scans only.
It is such a difficult decision!!!!
I know I have disease and it has to be removed, but what if there was no disease would you take the option of surgery??
Interested in any advice to do with BRCA.,
Hope you have all enjoyed the sun today,
Thanks for reading,