I was diagnosed with PPC today. I don't have all my results yet but feel very negative with all the info I have found. I am PPC be beaten?

[Gleedy]

I was diagnosed with PPC today. I don't have all my results yet but feel very negative with all the info I have found. I am PPC be beaten?

[Leeds2015]

Hello. I was diagnosed with pic stage 3chigh grade in June. Yes it is totally rubbish but this is something that can be managed well and lots of ladies are still here 10 years down the line. It is very individual so you shouldn't look at overall stats as it will scare you.

Have you any info about stage and grade and what the proposed plan is? I expect it will be carbo/taxol chemo? Have a look over my previous post, they may offer you some insight into what to expect etc.

Sorry you have had to join the site but hopefully you will find lots of support on here.

X

[Gleedy in reply to Leeds2015]

Thank you. I only found out yesterday so not armed with any information yet. CT scan today. Tracey x

[Katmal-UK]

Hi. When you're first diagnosed its natural to look for information. Please keep in mind that the statistics out there are statistics and you are not a statistic you are an indiviual who will respond to treatment in your own way. When I was diagnosed with OC over 8 years ago I was told Id have about 2 years based on statistics etc. Well here I am with a chronic illness, no evidence of disease, workng full time. Please make your journey your own, with all the beautiful, wonderful ladies on this site to support you. I dont know if your PPC can be beaten, I dont know if anyone can tell you that but I'll bet you'll hear from ladies who are doing well . I wish you well on your journey, a road none of us wants to travel but we are here to support each other. Kathy xx

[Gleedy in reply to Katmal-UK]

Thank you. I'm still in shell shock and panic. Less than 24 hours since I got the news. I'm 53 and always been a bundle of energy and the life and soul of things. I've just crashed. Your post has helped me. I will keep positive. Tracey x

[Katmal-UK in reply to Gleedy]

I was 48 on diagnosis, and so shell shocked I could hardly function but you'll surprise yourself I think, you'll find an inner strength you probably didnt think you had. I tend to meet things head on now, deal with it move on. I wish you well, keep posting your thoughts and feelings, it does help. We've allbeen there, done that, got the t shirt ! it does help . Sending you the buggest hug I can muster. Kathy xx

[Gleedy in reply to Katmal-UK]

Thank you so much. Again you have made me feel better. Need to stop crying now!! X

[valeriel]

I would like to think it can be beaten so I am going to have a dam good try at doing so!!! I agree with the replies so far. We are all so different and so are the cancers. I am planning to celebrate two years cancer free at the end of Feb. May be tempting fate but I fancy a celebration! I was diagnosed in October 2013, surgery in December 2013 and in Feb 2014 followed by "sweeping up chemo", finishing in June 2014. I found the waiting for tests and results the hardest to cope with. Once I knew what we were dealing with and there was a plan, things looked a lot more positive and I felt we were then doing something to deal with the dam thing! Just come back from 4 weeks in New Zealand and Australia which was fantastic so hey there is life after ops and chemo and hopefully there is life with PPC. Big hugs and keep in touch. Val x

[Gleedy in reply to valeriel]

Good for you val. Another glimmer of hope given to me. I hope you celebrate. I'm at that not knowing what's ahead. I should find more on 2nd Feb but I know a biopsy still needs to be done. So at the mo that horrible waiting game continues. Tracey xx

[IrishMollyO]

Hi Tracey

I am in my 5th year since diagnosis and apart from my initial treatment of carboplatin and Taxol I have had no further treatment. I was at stage 3c with a high CA 125 level which was back to normal by end of treatment. Everyone is different. I tolerated the chemo very well and felt very positive while on it. I was told to treat it as a chronic disease as I think lots of women are told to do. You will find your own strength through this. I am the biggest coward ever and I surprised myself . Your medical team will explain everything to you and the women on this site are wonderful. It can be isolating having PPC as so few people have heard of it but as you can see you are not alone . You will get so much help and advice here. I wish you all the best in your scan. Just take it one step at a time and you will get there. I wish I had known about this site in 2011. I only got to hear of it last year.

XXX

[Gleedy in reply to IrishMollyO]

So many lovely people on here. I'm so pleased it all worked for you. You have given me the glimmer of hope that my research has erased. Thank you.. Tracey xx

[IrishMollyO in reply to Gleedy]

And I know where your research lead you Tracey. To the Internet of course just like me. It is only natural when you are faced with something rare to start googling. It is there you find the worst case scenarios and nobody tells you about survivors . If you have any questions as you go along your first call of course is your medical team and after that the women here have so much advice and helpful hints as you journey on the road that we all know so well. Take care.

XXX

[Gleedy in reply to IrishMollyO]

I've stopped the Internet now as going round in circles. I'll keep you posted and just to let you know you and the lovely ladies today have really helped me x

[Martina18]

You go ahead and cry!! It was all I did for 3 months after my OC diagnosis in June 2013. A diagnosis like this is a major life changer and it is OK to grieve. Despite my tears, I got through everything, horrendous surgeries, chemo, lymphedema treatments, etc etc and would be jokey with anything I could and then would relinquish to the tears. It's OK to do that!! I am still suffering from chemo effects and may be facing my 3rd surgery for knee damage. I cried a lot yesterday again hearing that and fearing OC recurrence as well. I was 51 at diagnosis, active, working FT and cancer changed everything. I lost my job bc I had no more leave time, major financial issues, and have had to recreate myself several times over. Life can still be wonderful after dx but there will be days you can't believe what it has dealt you. Don't put the burden of always having to be positive on yourself. I really got sick of people saying (most not cancer survivors) "Oh, you just need to be positive" as if that would cure me. Yes, being 100% a Debbie downer is wearisome for everyone but a range of emotions is natural!! You WILL get through your treatments and see life on the other side but be kind to yourself and allow yourself to be human! HUGS!!

[Gleedy in reply to Martina18]

Thnk you so much. You sound like a lovely person. I can see the financial thing happening to me now but least of my worries at the moment. I hope you keep well. I am a strong person but as you know just 24 hours after being told I'm struggling. Take care x

[grannylo]

Hi Tracey

Scared and vulnerable, that was me 7 months ago too. PPC high grade serous, stage 3c. Now at the end of my first tratment plan and looking firward to Part2.

Once you have had your biopsy you will get your own treatment plan and you will start to feel in control again. Finding this forum was the best thing I discovered in my research. There is nothing that this group of women have not experienced in some shape or form. As a team they are invaluable in providing the emotional support to complement your medical team. As well as information and tips on managing the symptoms and side effects of the many variants of this type of cancer.

There are difficult days to deal with on the road to recovery, but there is plenty fun and humour on this forum too.

I am sure you will deal with this well. Looks like you have the basic toolkit already. You are strong, have life and soul and like to be a bundle of energy.

Welcome.☺

Loraine

[Gleedy]

I have been overwhelmed today with lovely replies. Only found out yesterday. I do need my results an plan. It will be easier then. With no sleep and an emotional wreck I did no go to work today. A hard day to get through. I wish you well with your treatments and thank you again. Take care. Tracey x

[jane2014]

Hello Tracey

Hope you were able to get some rest and feeling a bit better today. I was diagnosed with PPC in May 2014 and this forum has been an invaluable source of support and information and I'm sure you will find that too. I have found it useful to 'follow' the ladies who have PPC so I can keep up to date with their news and get alerts if they post.

Diagnosis is a massive shock but you do surprisingly come to terms with it.

Wishing you all the very best.

Jane xxx

[Gleedy in reply to jane2014]

Sleeping is horrible. In fact hate bedtime and that 4am waiting for morning slot. Thank you so much for your support x

[Dollysmum]

Hi There,

I have PPC as do many others here. You are not alone. There is some horrible and poor information out on the internet so avoid and be assured you are in the right place here and of course Macmillan is a very useful source of info.

Of course you feel negative - but be kind to yourself and cry it out of your system. I'm still fairly new to all this having been diagnosed in October and just undergone my second chemo. I would have been lost without this forum.

Debs xx

[Gleedy in reply to Dollysmum]

Thank you. I will be better when I have my treatment plan etc. That is at least a week away. I am a teacher and so hard being brave with the children all day on no sleep. This forum has helped me already and I really really appreciate everyone's support. I wish you luck with this round of chemo.

Tracey x

[Julie40]

Hi Tracey

I was stage 4 PPC back in Mar 2014. My prognosis was very poor and here I am still rocking. The statistics are frightening but it's best to avoid them and get an Oncologist that you trust and work through the plan. I was told my cancer was incurable but manageable I'm clinging on to that. There are many ladies on here that have it and have had long remissions. Focus on these women and ignore the Internet. So many knowledge women on here that will always be willing to help you with info.

Good luck for your treatment xo

[Gleedy]

Thank you. I have my appointment tomorrow but still only had ct scan since last appointment so know I still need a biopsy. I've been calmer over the weekend but as I'm getting ready for work this morning I feel dreadful again. Your reply has helped me. Thank you and keep well and strong x