Para aorta secondary lymph cancer

[harpur1]

Been told there is no cure the tumas are in back of stomach is this correct that they cant be surgically removed chemo doesnt seem to be working

[Hidden]

Well it is best to discuss this with your gp or surgeon and check again to see if there are any trials you could be included on. The Royal Marsden in Uk is good for trials and sorting out complicated tumours. Maybe ask for a referral there if you live in UK

[GillyN]

I have the same. There is surgery available to remove these but most gynaes are not qualified to do so and it requires a vascular surgeon. it will depend very much on whether there are tumours elsewhere and your overall health.

[lesleysage]

Hello, my para aortic lymphatic secondary tumors (clear cell carcinoma) grew close to the aorta and renal artery. I was told by the oncologist is 'was too dangerous to operate' so I chatted with my GP. He felt a second opinion was in order - sent all my notes to the West London Gynae Cancer Centre, at Queen Charlottes; they operated within two weeks, now nearly 3 years ago, and successfully removed them. I then returned to the oncologist for chemo of dose-dense carboplatin + taxol + avastin. My GP is pretty sure that had I just gone with more chemo as my oncologist recommended I'd not be here now, but if I was I'd certainly not still be in remission.

I was quite nervous about 'stepping out of line' but on return to the oncologist I was warmed by the number of nurses who said 'they wished more patients would ask for second opinions' as one consultant doesn't necessarily know the skills and knowledge of all the others.

So, I'd ask your GP and oncologist for a second opinion. Good luck whatever way you choose to go forward.

[Hidden]

My first recurrence was in the para-aortic nodes.

I had surgery then chemo.

I was told it was treatable but not curable.

It feels better to get rid of it totally.

However my understanding is that the jury's out as to whether surgery for recurrence has a survival benefit over chemo alone. I think that's what Desktop3 is looking into.

it's also becoming clearer that not all surgeons are able to do the same things that some of their colleagues can.

My current recurrence is in different lymph nodes and this time I've elected for chemo only though surgery would have been a possibility, albeit complicated.

From my position there's not been an obvious benefit from having the surgery. But who's to tell where I'd be if I hadn't?

Tough decisions.

Best of luck with it xx