Hi. Just diagnosed w mucinous ovarian cancer 2 weeks ago. Anyone have experience w this?

[Optimistic11]

[wendydee]

Hi

Sorry you've had need to find us on here. If you have a look on ovacome.org.uk under the heading 'resources', you may find some helpful info. It's well worth a look on the website.

Good luck with your treatment

Love Wendy xx

[Hidden]

Hi Optimistic

Sorry to hear about your diagnosis and that you find your self here. I was diagnosed with this in September, it seems it's a rarer type of OC but on the good side it is more often caught in the earlier stages. Mine was only found in the ovary - stage 1a so my treatment was a TAH with my ovaries and appendix removed. I have needed no further treatment just monitoring every 6 months and so am very lucky. Do you know what stage you are as this can. make a difference to your treatment plan?

This site is great- there are lots of ladies and some gents with loads of advice and support and am sure others will come along with their experiences.

Good luck with your treatment

Sue xx

[Optimistic11 in reply to Hidden]

They told me it was stage. No need for chemo-thank God

[Izzystep]

Sorry to hear your news. Devastating isn't it to hear you have OC?

You will find lots of support on this site from ladies in similar situations.

Pleas let us know your treatment plan and how you are getting on.

Love Izzystep xx

[BJ_UK]

Yes, I was diagnosed with a stage 1a mucinous adenocarcinoma of the right ovary in Sept/Oct 2011. I had a TAH, BSO and omentectomy, but chemo was deemed unnecessary. I've just graduated from 4 monthly checks to 6 monthly checks.

Hope your treatment goes (or has gone!) well!

Love and best wishes, Barbara

[Optimistic11 in reply to BJ_UK]

Me too! Same surgery! Feel very fortunate! Recovery is a little tough though

[Hetty]

Hi, I have mucinous ovarian cancer which is rare. Mine was diagnosed in Sept 2010 and I've had various lines of chemo and been on a couple of trials since then. The thinking is that this type of OC is different to the 'norm' (whatever that is) and should be treated in a different way. One of my lines of chemo was one usually given to people with bowel cancer!

I asked for a second opinion and went to the Royal Marsden where they have been fabulous. They haven't cured the OC (!) but are trying hard to slow its growth.

If you need more information just ask.

Hetty xx

[Optimistic11 in reply to Hetty]

Hetty- what stage is yours. Been ready about the new thinking that this kind responds to the chemo given for bowel ca. Your doctors are on top of it

[Optimistic11 in reply to Optimistic11]

Sry. Meant been hearing about --- can't type

[Hetty in reply to Optimistic11]

Hi, mine was Stage 2c. That seemed not too bad at the time but has since progressed around my pelvis, into my lung and recently my liver. My latest treatment is weekly Taxol, not sure how that's going so far.

Good luck!

Hetty xx

[Optimistic11 in reply to Hetty]

Hang in there Hetty!

[Optimistic11 in reply to Hetty]

Hello Hetty. Just checking in on you. Wondering how you are doing?

[Hidden]

Hi; I'm in the same boat; had TAH, BSO, omentectomy 6 weeks ago tomorrow. Thank god looks like stage 1a so no further treatment at the moment.

I don't know what the prognosis of mucinous cancers is compared with other ones. However mine was quite big (15x10x10cm) and visibly growing over the couple of weeks before surgery; it gave me bladder symptoms and that's what rang the warning bells. If it hadn't been filling with "snot" (the mucin) then I guess it might have given fewer symptoms and been diagnosed later. I don't know if that is typical of mucinous tumours. I have been too anxious to read up about them. (What's my favourite river? Denial)

Anyway, are you 2 weeks post diagnosis or post surgery?

[Optimistic11 in reply to Hidden]

Had same surgery you did on the 8th. Now 3 wks post op and finally feeling better!

[BJ_UK in reply to Hidden]

Mucinous ovarian cancers have a better prognosis than other ovarian cancers if caught early, but a worse prognosis if caught late, because they tend not to respond well to chemo. As yours was caught early, your prognosis should be good.

Mucinous tumours tend to grow very large in situ, before spreading to other sites, which is why they are often caught early. Mine (also stage 1a) was similar to yours in size!

[Optimistic11 in reply to BJ_UK]

We are very, very lucky BJ. How long ago did you have surgery??

[BJ_UK in reply to Optimistic11]

In October 2011.

[ClariceStarling]

Hi Op, I have no idea but ure on the right site, with great friends who will help in any way they can. I'm going through a scary situ at moment and girls/guys here lend a helping hand and give as much help/ support as u need , hope helps? Cxx

[ClariceStarling]

God love you Hetty and I hope u keep ure spirits up.? This site is full of hard nosed/women full of balls and I applaude every one. Cx