Embrel

[Neverwell]

Well it looks like I'm going to have to stop embrel as my leg has

come up as big as a grapefruit and red and itchy been to the

doctors and he said looks like a bad reaction phoned home care

and she thinks I will have to stop was doing ( slowly) better

never thought this would happen

Anyway hope you are all ok Karen x

[sciqueen]

Hi Karen

Sorry to hear about your leg. All might not be lost, it sounds as if you are having an allergic reaction. Have you been rotating the injection site? Speak/phone rheumy team they will be able to advise you best.

Hope your leg comes down soon & good luck!

Joanne x

[Neverwell]

Hi yes rotate leg leg then tummy tummy it only happens on legs x

[petalnumber2]

Hello Karen,

I'm so sorry that you've had such a bad reaction to Embrel, perhaps you can try a different type of anti-tnf once your reaction settles down.

My first delivery of embrel arrives the day after tomorrow, so first injection next week sometime. I am pinning everything on it providing some good relief from the constant pain in my feet and hands, but it's good to be reminded that it may not go to plan for me either.

Take care and keep your chin up. June xxx

[Neverwell in reply to petalnumber2]

Thanks June I hope all goes well for you I think this is just a Hic up

Hoping they can sort it out x let me know how you get on love Karen x

[Hidden]

oh so sorry,gosh such bad news x

[shirlthegirl]

Hi Karen i'm sorry it is so disappointing when the drugs don't work or give you side affects, I really hope they sort it out soon for you, have you been back to work yet? xx

[Neverwell in reply to shirlthegirl]

Thanks hoping for phone call off rummy today

Shirlthegirl due back the end of may only doing 7.5 hours a week

[jeanabelle]

The same thing happened to me too. My body was one great big roaring red rash. I had to wait a month and then I was put on Tocilizamub. I am to have my fourth infusion tomorrow. I have mixed results from it but the rheumy is insistent on keeping me on it. Good luck and don't give up home.

[Neverwell in reply to jeanabelle]

Thank you x

[Neonkitty]

So Sorry, Karen. Hope they can quickly sort you on something else if you do have to stop.

Hugs,

Julie xx