Rheumatoid Vasculitis: Hi I've just been diagnosed with... - NRAS

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Rheumatoid Vasculitis

Wolf52 profile image
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Hi I've just been diagnosed with this in addition to the RA I already have. Does anyone have any experience of this?

Thanks, Nina

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Wolf52
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Paula-C profile image
Paula-C

Hello Nina

It's Paula here, last saw you at the meetup at Coventry.

Sorry to read that you've now got this. There is a recent post on the Arthritis Care Forum at the moment and this is mentioned.

arthritiscare.org.uk/forums...

Hope that things get sorted for you soon.

Love Paula

Wolf52 profile image
Wolf52

Hi Paula, nice to hear from you. Thank you for the link, will have a look at this.

Best wishes Nina x

Hi Nina

If you haven't already, it may be worth reading our article on rheumatoid vasculitis for more information: nras.org.uk/about_rheumatoi...

There is also quite a lot of good information on the Arthritis Research UK website: arthritisresearchuk.org/art...

There is a charity we are aware of that specialise in vasculitis, so it may also be worth contacting them: vasculitis.org.uk/

I hope some others will be along to let you know about their experiences of this soon.

Kind regards

Sarah Kate

NRAS

JamieRN profile image
JamieRN

Hi Nina

I'm in the USA. I WAS DIAGNOSED WITH VASCULITIS WHEN I HAD 4 small strikes ( TIA) from having rheumatoid arthritis and lupus. Vasculitis is a simple term. It means UR vessels are inflamed inflammation causes irritation which can cause tiny clots to form and break off. It is very common in rheumatoid arthritis. Treatment is a BLOODTHINNERS and a baby aspirin ( here in the states) ask UR rheumatologist about it next visit. I was referred to a neurologist to manage those symptoms. But I'm an RN , have worked 30 years no stopping me. Also the clots are so tiny from the vasculitis I was disoriented and taken to the ER BY MY FAMILY where the small stroke was noted on the CT. BEST OF LUCK

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