Ann, i am sending you cyber hugs as you really need a cuddle and its the best i can do. At least the drs are on your case and doing their best to sort you out. Might i suggest you have a nice hot bath and soak for a while with some nice bath oil/bubbles. It might not do much for your ra, but it will make you smell nice and lift your mood. There will be plenty more lovely people on here who will do their best to cheer you up. Don't be sorry for being so fed up, we have all been there and might still go there so don't you worry about that.
Hugs sylvi.xxx
Pain, pain go away and never come back another day! Like Sylvie all we can do is send you hugs and thoughts to help you through the night. I hope they sort you out soon. xxx
Hi Ann - so sorry things are so awful for you at present. I do hope they can find something that works for you as being in constant pain is awful. I remember having that problem with the duvet and even now almost a year later I move about nervously at night in case things hurt that badly again. Luckily for me they never have.
If you can't get in or out of the bath with ease then a hot shower might be almost as good. MTX works well for me but the one that can cause eye bother (Hydroxichloraquine) I'm off at the moment and it doesn't seem to be making much difference yet. I keep wondering if my eyesight is getting better but it might just be my imagination. I really hope things improve for you soon. Tilda xx
Oh Ann, I really feel for you, I remember being at my lowest, not being able to lift my duvet, or do anything at all without being in pain!! sending loads of gentle huge your way. I really hope they get your meds sorted for you, real soon!!
Ann......my heart goes out to you as I too felt like that. Before RA was diagnosed with polymyalga. Was put on steriod and whole body pain and weakness almost gone in five days. My "V" pillow was and still is a lot of comfort and my wheat bag. Sending you lots of gentle hugs. Take care.....this site makes me feel better too x
Thanks linnieh, I have just had yet another jab and am feeling some
improvement today but I what scares me most is these flares are becoming
more frequent and I am not being heard by those who should care.
It gets me thinking they just hope I curl up and go away.
Managed to draw the curtains today and brush my hair, silly but I almost
jumped for joy LOL
Ann
Not silly at all - completely understandable. I think we have to keep pushing ourselves a bit to keep joints and muscles moving or they seize up. Try and do a little more each day if you can. Tilda xx
Hi gazelleLoL
I'm sorry to hear you're having such a tough time of things at the moment, and I hope your doctors are able to advise you on the next steps for your treatment. In terms of infomation on pain relief medications, the British Pain Society produce some useful booklets which you can download from their website: britishpainsociety.org/pub_...
We also have an article on managing the pain of RA which include some non-drug suggestions like using hot or cold packs to give some temporary relief, so there may be some new tips for you: nras.org.uk/about_rheumatoi...
There is also quite a lot of information on painkillers on the Arthritis Research UK website: arthritisresearchuk.org/art...
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Anybody with Palindromic Rheumatism out there?
Out of the Blue!
Anyone out there.
Hello there!! Introduction to me, my very first blog.
There is Hope!
