i am on sulfasalazine and eccoxolac, and i have been getting reallly bad sweats, its really embarrassing, went to see my doc, but he doesnt know if its a side effect or not, so i need to wait till oct to see my rheumatologist, has anyone else had this ??
kind regards
Hi, if you don't find anyone on here who is suffering the same you could have a word with your RA nurse then you wont have to wait until October when you see your rheumy consultant.
Judi xx
Do you think it's a side effect of the drugs, rather than the sweating you
can get when flaring? If I've got a few inflamed joints I can feel a bit feverish and sweaty. But yes, do ask your rheumy team as it's obviously getting to you. Polly
hi i had side affects from taking sulfasalzine, but i had a rash of lots of itchy spots, so had to stop taking them, still get hot sweats, i think mine are from taking mext, and from doing to much, as i think i can do the jobs at home like i did before, having R.A, Then i suffer, as been up most of the night in pain,, i have to got see my rheumy in oct, , hope you get it sorted, jo.
thanks for the comments people, i dont reallly know if it is a side effect from the tabs or maybe i am doing too much, i care for my partner full time due to MS, so sumtimes i dont reallly have the energy to do it and have to push myself which i suppose stresses me out, i will need to talk to my rhuemy. im still getting to grips with all the things that coems with RA, as im new to this, its like a whole new weight on my shoulders now, so im glad you people are here to give me advice and pointers. thanks so much .
I have noticed that I get more sweats from Sulpha - I'd stopped it for a few months & have just restarted it. Although I am post menopausal so get heat surges with that!!! they have increased since restarting, I'd had them when on them before but they had reduced on stopping it. Mind you this weather doesn't help either!
I take MTX and Sulpha and have a lot of hot flushes - it could be just being post-menopausal but it seems to be worse since taking the medication.
I link my sweats with the activity of the RA, rather than the medication, although I understand that the DMARDs and the steroids can also cause hot sweats. But, for me, they are worse when I have a flare.
I thought for ages that it was being post-menopausal, but when the joints settle down, so do the sweats, until the next flare.
I'm the opposite - when I flare I get a deep chill that makes me unable to warm up even though my joints feel as if they had been injected with boiling oil. It's a weird one but as I haven't flared for a while maybe things will change and the heat is yet to come. I've never really had hot flashes but am post meno now so maybe they are still to come too! Caring for a a partner with MS when you have RA yourself must be absolutely exhausting. Tilda xxx
Jonsi, I think you should put yourself first now when you have a medical problem. Caring for someone who has MS must be difficult when healthy, so what it must be like when you have RA I shudder to think. But you are looking after the two of you so you need all the help you can get as quickly as you can get it. Appointments with your GP are urgent, phone calls to your rheumy nurse are urgent as are your appointments with your rheumy consultant. Explain the position you are in. Also, if you can't get to see your GP ask for a telephone consultation.
Like I say, it's now time for you to go first - it's important for you both.
You probably are saying "yes, I know" to all I have said so I'm sorry to be a nag but I do really feel for you.
Also, dont forget the people at the other end of the 'help' line here ! From what I've read from others on here they are very understanding.
Big hug.
Judi xxxxx
Hi jonsi
In the patent information leaflet for sulphasalazine 'fever' is listed as a common side effect, but sweating specifically is not mentioned. Some people we have spoken to on the helpline have mentioned an increase in night sweats when their joints are inflammed but, as the others have mentioned, it is always worth speaking to your rheumatology team about any new or change in symptoms.
Kind regards
Sarah Kate
NRAS Helpline
thanks all, for your input and support will let you know the outcome.. xx
Are you still having regular blood tests while you are on the sulfasalazine? Fever can be a side effect just on its own, but it can also go with more serious side effects, so it might be a good idea if you aren't still on monthly blood monitoring to ask if you need to have another blood test.
yeah i get my bloods done every 2 weeks
Hi Jonsi, Like you I have had more sweats since starting sulfasalazine, now I have just been told to take methotrexate aswell, I hope the sweats dont get worse now, I'm already feeling a bit sick !!
Being new on here I want to say its great that you can get tips and answers from like minded people.
Thank you everyone.
yeah im still getting my sweats, im going to see the rhuemy nexr wed, so hope i get it sorted, i dont feel like the sulfas is working , as my shoulder and wrist is now affected, cant win can we !!
i havent been on this site for very long myself, but as you said its good to talk to poeple who are like minded and know the things we go through.
Hi Jonsi, Just joined this site to find out about Sulfasalazine and night sweats. I was on Mex for awhile but got taken off due to gastric stuff so rheumy's started me on Sulf. Not only have I felt worse, but I've been having terrible night sweats and then some through the day and I never had them before.
I'm on HRT gel cos of having hysterectomy and ovaries removed 7 years ago so went into a 'surgical menopause' and all symptoms well under control. Checked with my pharmacist to see if Sulf could interfere with HRT but he said no.
I just wondered how you are now and if you're still on the Sulf? I was taking it for three weeks and then went into the worst flare up that I've ever had - and am still in it. Hate it!
Really hope you're okay 
x
hi ellilu, welcome to the site, I don't take sulfa anymore it wasn't working for me, so now im on MTX and folic acid. I don't think they are working either, seeing the rheumy in august. I know its not very PC, but i smoke cannabis to help with my pain, and it works, I don't care what anyone says, if it helps me I will take it. I still get sweats but my rheumy said that's all part of the condition, nothing I can do about them.
hope you are well and get yourself into a comfortable state, peace n love xxx J
Hey Jonsi,,,thanks for getting back to me so soon. I really appreciate it. I stopped taking the sulf today - just had enough. Just so sick and tired of being sick and tired. I'm seeing rheumy nurse in two weeks so we'll see what she says.
Funny about the cannabis cos I don't do ( well haven't for about 20 years 
it but my friend has got me some and I'm going to try making tea with it! I don't want to smoke it cos gave up smoking 6 years ago and was reading about cannabis tea! She's bringing me some tomorrow to see how it goes. I don't care either what people think....if it helps, then I'll do it! But seeing you write this, must have been a sign to make the tea
Also Jonsi, have a look on ldnresearchtrust.org/ ....I've had my friend, who's a pharmacist look and she thinks 'why not'. Seeing my GP this week to ask her to prescribe but if not, will still go ahead with it. Go into the blog and type in RA...theres a wonderful story there that gives me hope.
We have to do what we have to do, don't we?
Interesting that you still get the sweats. I guess if its all part of my RA, then its yet another symptom to have reared it's ugly head cos I've never had them before!
Thanks again and keep in touch. Elli xxx
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