I posted the other day about meeting a nurse for the above and many of you were most helpful and supportive. I wish I could say the same for the nurse who visited me!
I suppose having spent 23 years as a financial advisor I should be aware of how companies view claims, how do you explain to someone how the fatigue feels so that you can concentrate for no longer than 2 hours? And when they blandly recommend 'exercise' as a remedy, how trying to run a business self employed with very limited energy and am told that perhaps I shouldn't think of the difficulties first. I definitely got the impression from this woman that she is of the opinion that my symptoms were very much 'in my mind' and needed to 'shape up!'
I honestly think sometimes (although not for long) that I would be better off being back to my worst when I couldn't even get out of bed or dress myself. At least then there was no question of my symptoms, this no-mans land of being half well is impossible. Impossible to work and impossible to not work.
I was asked about my hobbies which include Amateur dramatics, 'Oh really?' was the response, I tried to explain that I restricted any role to as small as possible with no strenuous activity such as dancing (in the panto). This was also met with disdain, are we supposed to give up all our interest's and hobbies and become vegetables?
Oh well...........