Sorry not narcissistic but if you have been at all concerned no need. I have just been so busy with doctor’s nurse’s therapists and specialists and an occasional plumber. I did write a blog called in search of a petticoat but my blooming little finger that is STILL numb hit the mouse and whoosh the words disappeared gone no more, so I've typed on word then copy and paste.
So pin your ears back.
Monday RA spec nurse only 1 hour late for appt. not bad really but the poor chap before me was packed off to hospital he was in an awful state.
So after looking at the wound site from my carpal tunnel I have been allowed to restart MTX and Humira, so I did Humira on Thursday evening, by the way I use the syringes as the epee pen was far too painful for me and I was always worried that I would flinch and that would be the end of that as the pen can't be reprimed. The syringes are small quite pretty mauve and pink and as you can actually pace the flow of the liquid it doesn’t hurt as much. The nurse also had a chat to me about my liver as my ALT has been really high 143 but in the last 2 weeks has come down by a 100 but there was a note from the registrar to say they would stop the MTX if I went over 150, I asked if there were any signs I should look out for if my liver was failing but apart from going yellow it is apparently an invisible illness that can send you loopy in the end. Lol. Maybe I have it already!!!
My 2nd appointment this week was a bit exciting I had arranged to meet a stranger a lovely sounding person halfway between our mutual towns well hers is a city mine is a market town famous for the river, the view of the church from the bridge and some old playwright called William... we met at a countryside park with a garden centre and a very nice shoe shop Pavers more of them later, but can I say I met Summer ‘Alison’ as I expected a very nice person with a good ski pole to aid her and a great sense of humour; we have both had RA for roughly 3 years; but I’m the lucky one as I live in Warwickshire and our hospital has good funding for RA Gloucestershire does not and Ali has not had the chance to try anything new but is being very brave and having gold injections. So we chatted for a good couple of hours then we went to the shoe shop I was after this years model of a sandal from Loretta a company that hand makes these sandals they are generally one colour with either embroidery to add different shades in shapes and flowers I’m in my 3rd season and still wear my first pair which are khaki green with a rainbow of coloured thread shapes, this years number are black with cut out flowers sewn over the front they fit perfectly and have a full heel back so no sliding out of them. Best of all they sell for £35.
I left Ali and we have promised to meet again, I then went home to wait for the plumber bathroom designer to call, as hubs how much I love this man said we I can have a bathroom to suit my needs. I’m just waiting for the final plans but we are having a very low profile open shower tray a high loo and lovely sink unit with a mirror that lights up and under floor heating as well as a heated towel rail. So going will be my orange 1985 fibreglass bath with matching loo and pedestal sink, an electric shower over the bath that cuts out if anyone else in the house turns the water on, we have a plastic ring with a shower curtain with ducks on it YES DUCKS, this is the second curtain we’ve had the first one had fish on it. So I’m after a very smart looking seat that folds down or up to go in the shower if any of you use one can you let me know make etc..
My hands have had it now so I’ll shut up for a bit and continue tomorrow, with the second half of my week, it’s a good job I’m still laid off from work as I have no spare time. Lol.
By the way I’ve ditched my old forum name and now instead of Travelgirl I think I should be Tenalady Love It.