I was newly Diagnosed with RA in 20th April 2015 which was my first appointment with my Rheumatology Specialist at Hillingdon Hospital...
At this appointment he Doctor took my blood pressure checked my finger joints by touching very lightly on each joint prescribed some meds and to be honest that was about it!
I came away a little despondent because I thought as I had just been diagnosed I would have had a much more careful look at all my joints ..maybe Scans etc..
Any Way I have been getting on with things on my own ...Feel Very alone! Suffering Badly with pain in my shoulder and general all over pain...Feel totally exhausted all the time!
... and have just had my second appointment some 5 Months after the first! Again The doctor Pressed lightly on my finger joints Elbows and shoulders ... Still had all my clothes on so don't know how he could examine my shoulder!
Promptly said my DAS was 3.2 slighlty less than first time and told me to increase my medication .... I was literally in there 10 minutes! I asked if I could see someone sooner next time and was told NO ... they don't have the staff and they would send me a letter in 2 months time so I can ring them and make an appointment which if as before would be another 3 or 4 months..
This seriously is not good enough
A. I have a right to regular appointments
B. Should not feel alone to cope with this Disease on my own
C. Should be having more thorough checks ...especially with my shoulder
I found on your website the NICE Guidelines for RA Patients and it does say that in the first year you should be seen every month!
I wonder what your views are on this and maybe you can guide me in the right direction to try and find better care for me and my Disease