Folic Acid : hello all, I’m hoping you can help me. I... - NRAS

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Folic Acid

debjw profile image
27 Replies

hello all, I’m hoping you can help me.

I’ve been told to increase my folic to every day other than the day I take my methotrexate due to thrush in my mouth. This week I’ve got a flu jab so not taking methotrexate. Do I not take any folic all week? Thank you ☺️

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27 Replies
helenlw7 profile image
helenlw7

I’ve been on mtx for about 15 years and have never been told not to take around the time of my flu jab.

debjw profile image
debjw in reply tohelenlw7

Ah okay. Do we have to stop it for the covid jab then?

helenlw7 profile image
helenlw7 in reply todebjw

I had my Covid jab today and was told I didn’t to stop it

Nyreedw profile image
Nyreedw in reply tohelenlw7

It was advised to stop meds, especially mtx, around covid jab as research showed the vaccine had better results, more antibodies, than those who carried on taking it. It was in the Rheumatology society guidelines. My hospital was part of the research X

debjw profile image
debjw in reply toNyreedw

Thank you ☺️

KittyJ profile image
KittyJ

I’ve never been told to stop it for any vaccines.

debjw profile image
debjw in reply toKittyJ

Just as well as I’ve got an awful flare. Trouble is I forgot and took folic this morning. Could I take methotrexate this evening as I was told I shouldn’t take it the same day or should I take it tomorrow when I have my flu jab?

ruth_p profile image
ruth_p in reply todebjw

I would just take the mtx as soon as possible. Taking the folic acid on the same day won’t do any harm. The reason we don’t take it on the same day as the mtx is that it stops your body from absorbing the folate. I do my mtx injection in the evening so I take the folic acid in the morning as usual and then don’t have any the following morning.

debjw profile image
debjw in reply toruth_p

Thank you that’s helpful

debjw profile image
debjw

Thank you.

Hairbraid profile image
Hairbraid

I saw my consultant last week asked him he said not stop methotrexate for flu or Covid said after covid vaccine might flare but carry on with it xxxx

KASHMIRI1 profile image
KASHMIRI1 in reply toHairbraid

I was told to not stop methotrexate by my rheumy as well. He said it was more important to

Keep things under control

Hairbraid profile image
Hairbraid in reply toKASHMIRI1

Yes mine said same 🥰

KASHMIRI1 profile image
KASHMIRI1 in reply toHairbraid

It seems to make sense to me

debjw profile image
debjw in reply toHairbraid

👍

debjw profile image
debjw

Thank you very much all. I’m very grateful to you 😊

Runrig01 profile image
Runrig01

So 2yr ago a study was published called VROOM, which looked at the effect of stopping MTX for 2 weeks following the Covid vaccine. It was found that those who stopped, produced twice the number of antibodies to those that continued. The British Society of Rheumatology, then published advice to rheumatologists, that for patients who were stable, they should stop the MTX for 2 weeks. Here’s the details of the study:

thelancet.com/journals/lanr...

I’ve held off for the 2 weeks since this data was published, on the advice of my rheumatologist. I did put links up in 2022 & 2023 re this advice.

Otto11 profile image
Otto11 in reply toRunrig01

Interesting. Thanks for posting.

Runrig01 profile image
Runrig01 in reply toOtto11

I’ve just updated with the BSR guidelines 👍

Runrig01 profile image
Runrig01

For some reason it won’t let me edit my previous response, but here’s the BSR guidelines

rheumatology.org.uk/news/de....

Mtx
debjw profile image
debjw in reply toRunrig01

Thank you so much for this. I have a flare atm following having to stop Abatacept and methotrexate so I’ll see how I am next week.

Runrig01 profile image
Runrig01 in reply toRunrig01

This is what is in the Green book, that health professionals follow re vaccines

Green book
debjw profile image
debjw in reply toRunrig01

👍

Gymcactus profile image
Gymcactus

I am having my flu vaccine on Monday and covid one on Wednesday, my R,A. is stable so will not take methotrexate for 2 weeks but am also on sulfazalazine that I continue to take.

debjw profile image
debjw in reply toGymcactus

Good luck 🤞

Happy5 profile image
Happy5

I continue with my folic acid every day other than MTX regardless of flu jab or Covid vaccines etc, never been suggested not to.

debjw profile image
debjw in reply toHappy5

👍

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