Update on “angel wings”: Well I bit the bullet and made... - NRAS

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Update on “angel wings”

Kati66 profile image
10 Replies

Well I bit the bullet and made an appointment with the GP about the pigmentation change either side of my spine. I spoke to a nurse practitioner who said that as it started a three weeks after starting Hydroxychloroquine, it was most probably that. She said skin changes are a side effect of this medication. I’m seeing the rheumatologist consultant on the 25th, so she suggested speaking to him about it.

Another side effect to deal with then!! 🙄🙄🙄

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Kati66 profile image
Kati66
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10 Replies
AgedCrone profile image
AgedCrone

If the Hydroxy is working & it doesn’t hurt…if the rheumy says it won’t do any harm..I’d stick with it!

Fruitandnutcase profile image
Fruitandnutcase

Keep us posted as to what your consultant says.

Hisue profile image
Hisue

How do you see back there?

Kati66 profile image
Kati66 in reply to Hisue

It was my husband that noticed it and he took a photo to show me

Fuzball profile image
Fuzball

Hi Kati66, I've been on these for about 10 yrs and have never had any side affects. This is the only drug that helped me and I tried a lot. So if it's working and not doing any harm I would stick with it.

Shellymay21 profile image
Shellymay21

I'm sorry your having more side effects this one l definitely don't have or want lve been on Hydroxychloroquine for at least 4yrs now the only side effect l have is with my vision which has deteriorated now had my glasses change prescriptions 4 times l cant read close up anymore without my glasses l did have 20/20 vision so yes l am really upset about this but on the other hand my ra is under control 😢

Kati66 profile image
Kati66 in reply to Shellymay21

It’s a hard one to balance meds and side effects isn’t it. Sorry you eyes have been affected. Xxx

wakeham profile image
wakeham

Hi kati66, I’m sorry that you have this problem it must be worrying for you, I’ve been on the drug for several years and not had this happen to me. I hope the consultant will be able to help.

Regards wakeham

Keepinmovin profile image
Keepinmovin

It would be good to know what it is about hydroxychloroquine that can cause skin changes. Let us know what you find out at your appointment with the consultant.

Kati66 profile image
Kati66 in reply to Keepinmovin

I will let you know once I’ve seen him on the 25th. Would be good to know why, I agree.

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