More bad news thanks to RA and MTX....: I spoke to the... - NRAS

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More bad news thanks to RA and MTX....

sylvi profile image
39 Replies

I spoke to the dr on Wednesday and got told to take the rescue pack i had in the cupboard and to ring him today. He came out this afternoon to check me over and said i have fibrosis now to add to the mix. I am down the hospital on the 1st of June for respiratory to see what they can do about it. Just something else for me to fight. xxxx

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sylvi profile image
sylvi
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39 Replies
Neonkittie17 profile image
Neonkittie17

I’m so sorry to hear this. I hope your respiratory consultant can answer all your questions and help you manage this with physio and meds. Thinking of you, dear Sylvi. 💗xxxxx

Fruitandnutcase profile image
Fruitandnutcase

Oh Sylvi - it just goes on and on doesn’t it! You must be so fed up with feeling bad. Sending you good weekend she’s, hope yu feel better soon. x

Evaflo10s profile image
Evaflo10s

I really feel for you . It’s been one thing after another for you 💐x

Mmrr profile image
Mmrr

Sorry to hear this sylvi.

Flor1rence profile image
Flor1rence

oh Sylvi, im so sorry to hear your news, you could do without this for sure. Sending some love to help with your day💖💕💟🎀xxxx

Madmusiclover profile image
Madmusiclover

Much love. So much to cope with….x

Oh Sylvi sorry to read this xx

Lolabridge profile image
Lolabridge

Oh Sylvi what a blow! Hope the respiratory team can help you to manage it. You’re a fighter - stay strong 💪 xx

ruth_p profile image
ruth_p

So sorry Sylvi, sending big hugs x

Biofreak profile image
Biofreak

Sorry to hear this Sylvia. One of the potential problems with rheumatoid arthritis and the drugs we have to use to control it is lung issues including fibrosis. Our weakened immune system make us susceptible to infections and if you are unlucky and have had lots of chest infections, pulmonary fibrosis sometimes can be the result. It's no wonder you are having problems with your breathing. I hope your respiratory team can help you manage this condition and improve things for you. You already have so much to deal with and you don't need anymore. Xx

Pulfs profile image
Pulfs

Sorry to hear this news sylvi, hopefully they can help you at your appointment. Big gentle hugs 🤗 take care 💐

smilelines profile image
smilelines

Very sad to hear this. I have a chronic cough and they want a chest X-ray every year now. Damn disease.

Deeb1764 profile image
Deeb1764

It’s like a collectors badge club this RA and friends club! None of want to be part of it either. Big hugs x

Downtime profile image
Downtime

So sorry to hear this . Yet another thing to deal with. They do have drugs to to control fibrosis now I believe so fingers crossed . xx

sylvi profile image
sylvi in reply to Downtime

I will know more when i see the consultant on the 1st of June. I have a holiday next month to look forward to even if i have to alter my trips out. I know things will have to change, but that will happen over time.xxxx

sylvi profile image
sylvi

Thank you all very much on my post about my new diagnosis. It is just something else i have to fight and i will.xxxxx

rabbits65 profile image
rabbits65

Good morning Sylvi , your a strong fighter that’s for sure , a lovely lady xxx

sylvi profile image
sylvi in reply to rabbits65

Thank you darling i don't have a choice do i . xxx

rabbits65 profile image
rabbits65 in reply to sylvi

Well you say that but we do have choices , I think that when we get poorly it’s best to try and fight it this should make us stronger mentally and then physically will follow hopefully . It’s a lovely sunny day . But still really cold . If you have a bad chest then this weather is too cold to go out in xxx

sylvi profile image
sylvi in reply to rabbits65

Until i see the specilaist darling i don't have a choice, but i will fight to best of my will darling. Bob has gone shopping, but i have stayed here in the warm. I am very wheezy at the moment. xxxx

rabbits65 profile image
rabbits65 in reply to sylvi

Have you ever tried inhaling steam over a bowl for some comfort, how is Bob getting on , he is a very kind person to you .

sylvi profile image
sylvi in reply to rabbits65

Not given that a thought darling. I will give it a go and see what happens. Bob is on the mend as the drug he was on was causing him major problems and within 24hrs of stopping he was better and has been ever since. xxxx

rabbits65 profile image
rabbits65 in reply to sylvi

It goes like that sometimes Pleased he’s feeling better . xxx 😃 😊

sylvi profile image
sylvi in reply to rabbits65

It was amazing how quickly he recovered from the drug darling. xxxxx

Runrig01 profile image
Runrig01

Does the respiratory specialist know about the fibrosis. Have you had a CT. I ask as I had a T last year which showed fibrosis, my gp had sent a routine referral to respiratory at the same time as ordering the CT. They weren’t seeing routine patients but when I explained my diagnosis I was seen in 2 weeks. Perhaps see if they can bring your appointment forward. If not your gp could order your HRCT and lung scan to avoid delays when you do see respiratory. It is a stressful time and an emotional rollercoaster. Sending hugs 🤗

Sheila_G profile image
Sheila_G

Oh no Sylvi. I hope you can get something sorted out soon.

Gladders profile image
Gladders

Sorry to this Sylvi not something you want to hear, your GP sounds as if he's very pro active and taking good care of you. I hope your Bob is feeling ok now.

Zara0123 profile image
Zara0123

So sorry to hear this. I hope you feel better soon 💐

Knip profile image
Knip

Oh Syvi, you have so much to deal with already. I'm really sorry that you have yet more. Thinking of you and holding you in love and in prayer. God Bless dear friend. xx❤️❤️

dippyd09 profile image
dippyd09

So sorry to hear this Sylvi especially after all the other things you’ve had recently. I hope you can get some answers and treatment when you see the respiratory folk soon. Take care xx

Monkeysmum profile image
Monkeysmum

Oh poo pants Sylvi (I would say something stronger but may be banned!). Sorry to read your update, sending a big hug, I know you will fight as you always do but please be kind to yourself too. 🤗

Gnarli profile image
Gnarli

Blood and sand, Sylvi, what rotten luck. Here's hoping you can pull round from this, too

sylvi profile image
sylvi in reply to Gnarli

I will darling have no fear of that. xxxx

Bella59 profile image
Bella59

So sorry to hear you are having more health problems Sylvie.

helenlw7 profile image
helenlw7

Oh Sylvi, I’m so sorry to hear this. It just seems one thin after another for you and your hubby.

Hug

Sorry to hear this has developed, Sylvi. Take care ❤ xx

Blodynhaul profile image
Blodynhaul

Very sorry to hear this SYlvie. Truly hope things can improve for you very soon xxx

Take care xx

Green230461 profile image
Green230461

You are just checking in your NHS vouchers this year! Keep your chin up you RA WARRIOR 💐

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