Interesting reading for us that take Sulfasalazine.

[woodstar1]

Hi guys, during the pandemic my consultant did talk to me about my risk as I take Sulfasalazine. This is a report that I have just found, not to worry anyone just for information.

creakyjoints.org/living-wit...

[MadBunny]

Makes interesting reading although I'm no longer on sulfasalazine.Thank you for sharing it.

[helixhelix]

One thing you need to bear in mind that this is really just talking about relative risk. So the relative risk of someone on sulpha getting severe Covid is perhaps higher that someone who was not on Sulpha. But, and it’s a big but, the absolute risk of this happening is still very, very tiny. Especially if under 80 and with no comorbidities. So try not to let it get to you.

[hoping2021]

Would patients on sulfasalazine be offered a 4th booster vaccine then?

[woodstar1 in reply to hoping2021]

It's definitely a question to ask.

[Brikel in reply to hoping2021]

I’m on Sulfasalazine and had my 4 th Jab a month ago

[hoping2021 in reply to Brikel]

Were you given it because of sulfasalazine or because of other reasons? My husband has not been offered it.

[Brikel in reply to hoping2021]

I’m not sure The notifications for 4 th jab came out of the blue

[Clare-NRAS Partner NRAS in reply to hoping2021]

Yes

[pippin_fort in reply to hoping2021]

I have had my 4th vaccine

[sylvi]

I am on it and i find it is the best drug for me as i can't take biokigicals or mtx.xxxx

[Murraymint49 in reply to sylvi]

Hi I have just started sulfasalazine this morning, I am a bit confused about what times to take it it says not to leave more than eight hours between doses is this essential. I am starting on 1 a day for a week Then week 2 a day

Week 3. 1 in the morning

2 in the afternoon

Week 4 .2 in the morning

2 in the afternoon

[woodstar1 in reply to Murraymint49]

Hi pal, I've been on it for years and been fine. I take two 500mg in the morning then two more at tea time. I have no real side effects except for bright yellow pee, could be worse! Hope you are ok with it.

[Murraymint49 in reply to woodstar1]

Thanks for replying. I have been putting off taking it ,but I decided today is the day

[woodstar1 in reply to Murraymint49]

It's a very worrying time and I'm sure we all felt anxious taking meds when I'd previously taken nothing at all. I saw my uncle who had RA and he refused treatment, it was horrendous so I bit the bullet. Today I'm doing really well, exercising 5/6 days a week and working full time in a stressful job and back to normal almost. I have the odd flare, usually stress driven so be aware and fingers crossed you'll reap the benefits as well. Take care.

[Murraymint49 in reply to woodstar1]

Thank you..I couldn't leave things the way they are . I need to get my life back ,hope this works

[Boxerlady in reply to Murraymint49]

I gradually worked my way up to the maximum 6 tablets a day - 3 in the morning, 3 in the afternoon/evening.I take all tablets after food so with breakfast (8.30 am) and tea (6 pm)

I initially had some short-lived nausea with each dose increase but it always settled after a few days and the only lasting one is the impressively yellow wee 😂 It's definitely had a good effect on my joints, along with my existing Methotrexate and Hydroxychloroquin so I hope that it works well for you 🤞🍀

[Murraymint49 in reply to Boxerlady]

Thank you . Sorry I left it so late.

[Hidden in reply to Murraymint49]

I take 2 doses a day. One with breakfast one with tea/dinner. Have Never worried about timings. I notice straight away if I miss a dose so it must be good 😀

[Jackie1947]

Been on Sulfasalazine for 14 years. No problems. Had 4th covid jab yesterday as over 75 not because I'm on the drug.

[Briefencounter]

I’m on Sulfasalazine and Methotrexate . Sulfasalazine , along with Hydroxychloroquine , is often discounted as medications that qualify for third and fourth vaccines . Not sure that this article will change anything , although it’s interesting. Fortunately, I’ve been able to have all vaccines so far and booked to have my 5 th in April .

[Ascidian]

Very interesting, thank you Woodstar. I'm on mtx, but only 20mg so didn't qualify for 3rd primary (although I know some people managed to get it for that dose) and am also on sulfasalzine. I will definitely make sure I push for a booster when my six months is up. Also, our rheumy department has recommended that everyone on mtx stops their meds if they catch Covid. I think I will also consider stopping sulfasalazine.

[Hopeful1]

I asked my consultant. They suggestef more info needed as to where research was done. Had folk been vaccinated? What other surrounding conditions? I tried reducing sulpha.. but not so good without despite also on metho and hydroxy.

[Green230461]

Thank you for sharing this very interesting! At a recent F2F meeting my rheummy suggested I try to get off sulfasalazine by moving down to one then non. I wonder if there is a link?

[Jimminey]

Thank you very much for sharing that. I have also had 4 severe cases of food poisoning in 2 years (opposed to 2 in the previous 63 years) since starting taking Sulfasalzine, which were confirmed by my GP as being associated - but haven't come across any others with the same problem.

[Hidden]

I get 3 monthly bloods due to being on Mtx (am on Sulf also) so my WBC is regularly measured. Maybe people who are concerned should ask for their bloods to be done to alleviate any fears/ anxiety.