When I started on my RA journey approx. 9 years ago, my ESR reading was just over 100. I was started on MTX and slowly the level came down and I did start to feel a bit better over time. However, since that original RA diagnosis, my Rheumy left and I have seen two replacement rheumys. The last visit to clinic resulted in my being told my ESR has dropped to 12 and that hey, I am in remission!! I am clearly not in remission because I still have the same old hot and painful joints. I also have severe problems with my hearing and vision, both caused by auto immune disease according to the consultants I have seen for these distressing problems.
I was wondering if anyone has been told they are in remission, based on ESR reading, even tho they still are suffering.
By the way, seen my GP this morning and I am now on my way to being seen by new Rheumy in different County.
Lynda x