Share your story – not currently treated with advance... - NRAS

NRAS

37,229 members46,073 posts

Share your story – not currently treated with advanced therapy; DAS score below 5.1

3 Replies

You may have read the brilliant news that the National Institute for Health and Care Excellence (NICE) has issued draft guidance that gives approval for certain anti-TNF therapies to be prescribed for people with so-called ‘moderate’ rheumatoid arthritis (see nras.org.uk/2021/06/10/bigg....

If the following apply to you and you would like to share your story, please email samuel@nras.org.uk:

* this issue affects you and you are willing to share your story publicly, e.g. in a news piece

* you are NOT currently being treated with an advanced therapy such as a biologic/biosimilar or JAK inhibitor

* you feel your disease is active and is impacting your daily life

* you have lived with RA for more than 18 months and are not newly diagnosed

Thank you!

Read more about...
3 Replies
GinnyE profile image
GinnyE

Don't think I fit the criteria yet, but what good news for the future. Thanks for the information.

Garnacha profile image
Garnacha

Thank you for sharing this article, I’m currently on hydroxychloroquine, methotrexate, Lefluminode, etoricoxib & prednisolone, my consultant who I saw privately said I may need more expensive treatment which I believe could mean biologics, he advised my gp to add me to the NHs list which I was informed currently has a 77 week waiting list, I found out yesterday that the drs have sent a follow up letter asking if my appointment can be expedited as I’m unable to even access the rheumatologist helpline until I’ve seen the NHs department.

I’ve been diagnosed with psoriatic arthritis so this announcement will hopefully mean good news for me as well as many others.

Thank you to all concerned for campaigning for more equity in relation to anti-TNF drugs

Thank you… I pace and rest to prevent flares, so my DAS is always low/ moderate… My life is non-existent. This can hopefully change now…

Not what you're looking for?

You may also like...

Urgent help required! Is your DAS score <5.1 and your RA not well controlled?

Dear all, We are currently writing a consultation response for NICE on access to rheumatoid...
EmmaS-NRAS profile image
NRAS

Rheumatoid Arthritis and COPD

NRAS has been asked to produce an article for the Guardian newspaper winter supplement looking at...

Prescriptions: to charge or not to charge?

The Prescription Charging Coalition, of which NRAS is a member, will soon be publishing a report on...

Information evening in Harrow 25th March

Hello I've had RA for 6 years and leading a relatively normal life. I am now a volunteer for NRAS -...
Idontdoflats profile image

This week is Foot Health Week

This week, along with The College of Podiatry, we are promoting Foot Health Week. For some people,...

Moderation team

See all
KateL-NRAS profile image
KateL-NRASAdministrator
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.