Iv been taken off this injection due to having mouth ulcers?
Abatacept : Iv been taken off this injection due to... - NRAS
Abatacept
Oh, I've been on this drug for about 4 years now and it has been a wonder drug for me. I did have to reduce the dose as I am petite and the standard weekly dose was too high so I now inject every 12 days. The only known side effect I had when I was on the weekly dose was the return of severe migraines which disappeared on reducing the frequency of taking the drug. Hope you find an suitable alternative Beth
That's really interesting Beth, thanks for sharing. I currently take weekly abatacept and for 2 months have been plagued with clusters of really painful mouth ulcers. When I spoke to rheumy helpline the nurse said abatacept doesn't cause mouth ulcers!!!!!! So the GP has recommended taking a break of 2 weeks and given me a supply of steroid mouthwash, currently on the 3rd batch of mouthwash. Longing to be able to eat fruit and proper food without tears in my eyes😥. This for me is where only telephone appointments are inadequate, no chance to properly talk about symptoms and treatment. Hope your mouth heals soon.xx
I have experienced a burning tongue, wondered has anyone else had this ?
Hope you find one that suits you , blooming side effects hey ! It seems to suit me apart from the tingly tongue !