Can RA cause a crushing pain in shoulders/spine?

[mille]

Just wondering if anyone would know if this horrible disease can cause a crushing pain between shoulders and at the top of the spine. I went for a swim on Thursday and on Friday afternoon the pain started. I was in tears with it last night. It feels hot inside too. I have been so tired lately. I do have a lot of stress going on in the family but this heavy feeling is horrible x

[Jesnaskah]

Yes, it probably is RA. It can cause all types of pain, everywhere! I even have jaw pain

[mille in reply to Jesnaskah]

Thank you, it seems to pop up everywhere x

[Jesnaskah in reply to mille]

When I was at my worst, I remember trying to sleep, and the entire left side of my body would go numb. All kinds of crazy sensations, never mind pain. I thought I was going to die. RA is so much more than just joint pain. Once it's somewhat controlled, it's such a life altering relief.

[mille in reply to Jesnaskah]

So true. It made such a difference when I went onto Rituximab but that was about 7 years ago and it doesn't seem to be as effective anymore, especially since they started using a bio-similar. x

[Jesnaskah in reply to mille]

Ugg I'm so sorry to hear that. Is there anyway you can get back to the non biosimilar...it would be an interesting experiment to see if that's the cause for it's ineffectiveness and then maybe you can fight to get it back 🤷🏻‍♀️

[mille in reply to Jesnaskah]

I will ask but can't see them agreeing as it is all about money xx

[Deniseelk]

I would most certainly contact your Rheumatologist and keep a diary of symptoms and daily activities to guide him / her. Have you considered AS or been investigated for it?

[mille in reply to Deniseelk]

I often blame RA for everything and it could well be something else too. i will call Rheumy advice line on Tuesday, thank you xx

[Madmusiclover]

I’m sorry to hear this. My shoulder and neck pain is osteo but I know about unexplained pain and fatigue. I think I would ring the rheumy advice line.

[mille]

Thank you for your reply. I will give them a call x

[Nicanoo]

That's horrible.I had such a bad pain in my shoulder, pre methotrexate, I drove myself to A and E! That's after having 4 children with no pain relief, I hope you get sorted x

[mille in reply to Nicanoo]

Thank you. It has eased off a bit today x

[Mmrr]

I get a lot of shoulder, upper, middle and lower back pain...pain anywhere in fact.It might be worthwhile mentioning to your rheumatologist.

[mille in reply to Mmrr]

Thank you, i will x

[Helen-NRAS Moderator]

If you would like support, information or just someone to talk to, our NRAS helpline is open every week day from 9.30am to 4.30pm nras.org.uk/helpline/ 0800 298 7650. Or have a look at our website nras.org.uk.

[mille in reply to Helen-NRAS]

Thank you Helen x