Has anyone been told they have sticky blood and had an explanation of what it is, without being told it's full-blown Hughes disease? Doc once dropped into the conversation that I have sticky blood, but didn't elaborate or offer any treatment or solutions.
Got me thinking about it again yesterday, since I had the OX vax last month and new headlines re blood clots slightly freaked me out, as last night I felt the veins in my foot where throbbing badly :/ My cousin dropped dead from DVT. I have a phone apmnt nxt week with my rheumy and will defo ask him but wondered if anyone here has any insight.
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Deminem
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What was the context? Sometimes when I am having blood taken thenurse harrumphs and complains that my blood is very sticky, which I’ve found just means I’m a bit dehydrated and they struggle to get blood out of me rather than actually suspecting I have sticky blood syndrome. Which is rather more serious.
On my blood test results it also usually has a box for the aspect of my blood...which is usually given as limpid which i interpret to mean normally gloopy.
If you are worried by the comment then ask for an antiphospholipid blood test.
That's the thing, I can't quite remember the context as it was about 10 years ago.
I just recall that it wasn't my regular Doc that said it, and it was a stand-in calling me about blood test results. My regular GP is brilliant, and on the ball, a safe pair of hands but he never mentioned it and I forgot to raise it. Will do though. Thanks for the info on what test to inquire about.
I currently have a deep vein thrombosis aka clot. It was diagnosed in September 20 and didn’t shift or change at all with riveroxibam. I have been on pradaxa since end of dec. and am waiting for a scan to see if it’s shifted though the symptoms have disappeared and I have got the feeling back in my toes and feet. Can’t be a coincidence so am expecting them to confirm it has gone or at least reduced. They did a ‘sticky’ blood test some months ago and I am just over the normal range. Heading for another test shortly. Lupus was discussed but they need to do more tests.
Hi, the Lupus UK Healthunlocked site and the Lupus UK site itself has lots of info on sticky blood/Hughes Syndrome/APS whatever name you like to give it. Paul Howard is CEO of lupus UK and I think has some advice re vaccines and Hughes. He is contactable via lupus UK HU or email.
Hia, no I haven't been diagnosed as such, just a GP once said in passing, you have sticky blood.
I will dig into it now though. Thanks for the info. I have 3 monthly FBC(Full Blood Count)tests done for RA and looking online today it seems as though any clotting blood disorder would be picked up in those tests so not as worried now.
Yeah, as I understand it you need either two or three Positive aps tests 12 weeks apart. (My friend has it but because if shielding we haven't seen each other for ages).
Hi there..you want to be on the Hughes Syndrome- APS support forum.members are very knowledgeable and will help with your questions.I have sticky blood.another name is antiphospholipid syndrome..hence APS or Hughes syndrome after the professor who discovered it.You need a specialist who understands this.
Well you learn something every day. I was diagnosed with sticky platelets in about 2005. I was advised to take a half aspirin every day and a full aspirin for at least three days before flying or traveling long distances in car or bus. Last year when I was diagnosed with microscopic polyangiitis they changed it to Clopidogrel. I have had no problems. I now have a lot more information to look at. Thanks.
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Repeat of full blood count
Vitamin D blood test? 
Can anyone please shed some light on blood results? 
Has anyone developed a blood disorder since their diagnosis with RA?
