I keep a day to day diary now when on a new drug to keep track of what is going on.
Sat 9/1/21
Slept through almost but no cocodomol for headache at 3am. Woke 7am very dry sicca eyes and mouth eye drops in. Joints not too bad for me today so able to do stairs quite well.
Low fatigue today managed to get thro without crashing so managed to get speed cleaning done for kitchen and bathroom in 30min cycles so 2hrs total.
Knees a tad pingy today but not too bad but hands starting to swell up again after 3 days low.
Appetite low but hey need to lose weight so not worried
Scalp tad tender today
End of dAy eyes burning again so more eye drops
Shoulders have just decided to join the party again but probably after clean session
End of day - not a bad Sat really for an RA Beginner
When I read it I then laughed as I thought this was a good day and someone who does not understand RA might think that seems crap!
It’s amazing how well we manage with what’s going on. You’re doing really well with a great deal of things being thrown at you. 🥰 I certainly look at many things now with very different eyes since this all started. I have knee envy all the time... anyone who can stand ... walk... basically anything 🤣
Keeping a diary is such a good thing to do on many levels. Keep it up. You might even write a book one day! Have another good day. That's how I look at life. One day at the time.
Ha I’m the same if I ever manage to summon the energy up to clean the shower I always need to use it afterwards lol. I generally clean it without clothes on anyway so whilst I’m swilling it I clean myself off too. Always think it was a bad idea afterwards as that’s usually all the energy I can muster for the day. The best thing is though I usually make a better job of it than my hubby and still get a sense of achievement which is a bit sad really 😬.
I keep a diary of symptoms too Dee, find it really useful to look back through before a Rheumy appointment (when I used to have those!).Just one thing though - please can you not show your diary to my hubby? 2 hours of cleaning is far more than I’m currently doing! 😉😂
Keeping a diary is such a good idea Dee. I keep a diary at the moment too thanks to the advice to do this when joining this lovely forum. Thinking of you x
I have been taking Benepali for nearly three years now. It is excellent! But it took two years to work. I stuck at it because I had no real side-effects apart from slight itching in the site. Good luck with it!
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