Rheumatoid arthritis hot flushes : Does anyone else... - NRAS

NRAS

36,601 members45,223 posts

Rheumatoid arthritis hot flushes

cpr02 profile image
38 Replies

Does anyone else ever experience this

? It usually happens when I wake up my pjamas are drenched in sweat like I've been really hot overnight

Is it connected with rA?

Thanks x

Written by
cpr02 profile image
cpr02
To view profiles and participate in discussions please or .
Read more about...
38 Replies

This happens to me first just at night but get it in the day time now as well . Went for a walk just an hour ago freezing cold outside I’m sweating buckets. Fir me it’s a sign my disease is active. I know I’ve over done it today joints swollen and body over heating

cpr02 profile image
cpr02 in reply to

Thanks would make lot of sense as it is ! Have had a steroid injection but didn't help xx

in reply to cpr02

Thesteroid could make you sweat as well. So many variables 🤷🏽‍♀️I feel I’m always second guessing xx

cpr02 profile image
cpr02 in reply to

It was around two weeks ago now xx

in reply to cpr02

For me the benefits of a steroid injection only kick in about 10 days after .

rab1874 profile image
rab1874

Yes I can sympathise with you,covers on covers off, my usual patter at night time xx

vonniesims profile image
vonniesims in reply to rab1874

Yes, starts in the evening and stops about 4am. Sure its RA or drugs

rab1874 profile image
rab1874 in reply to vonniesims

Yes I think it’s another side effect of RA

benjijen profile image
benjijen

I didn't put this down to my inflammatory arthritis, just age or thyroid, but it makes sense. My bed covers are on and off all night and if I put my glasses on for some reason during the night they steam up! It's not like that every night but about half of them. Don't know what the answer is.

Dobcross1 profile image
Dobcross1

Ye! Boiling hot, then too cold. Can't win 🤷‍♀️🤦‍♀️

Linda-C profile image
Linda-C

I have to have a cool bedroom or I keep waking up too hot, then have to get up to go to the loo. It’s a pain, I am so pleased when I wake first at a reasonable time. Just doing this on the phone my son brought me for Christmas. So happy Christmas to all

in reply to Linda-C

Lucky you a phone for Christmas .. I got several bottles of gin... wonder what that says about me😁.

My bedroom is positively arctic still wake up sweaty.

Linda-C profile image
Linda-C in reply to

It’s nice to know other people have the same problem and I am not imagining it

in reply to Linda-C

😂😂cheers

Lizard28 profile image
Lizard28 in reply to

I Got a lovely bottle of cognac and a nice bottle of Hendricks gin, what does that say about me 😜🥂x I’d also get the sweats checked out by your doctor, it could be another problem, best to be safe.

in reply to Lizard28

Give people a bad name 😂😂

I have seen the gp and my Clinic they confirmed RA I’ve been constantly sweating since Christmas Eve I think baricitnib that I started a month ago not working it started so well. I’m swollen stiff and sweating 🤬gin might be a better medication 😁

Ms-D profile image
Ms-D in reply to

You poor thing. My Idacio has given up. I swear I'm menopausal too or ra is active. Fun times....need my baileys now

in reply to Ms-D

Oh 🤬this trial error to find the “one” is so draining. I’ve gone through the menopause so it’s not that for me. Since Christmas Eve I’ve been sweating and my joints swollen and stiff struggling to put on shoes hubby had to help.slept nearly all day. Only day 35 of Baricitinib so gotta keep going.

I’m on the gin. Rather self inflicted misery than RD misery at Least I enjoy while drinking.x

Ms-D profile image
Ms-D in reply to

Are you taking the biologic weekly?

in reply to Ms-D

No a tablet a day . Methotrexate once a week

Ferret18 profile image
Ferret18

I put it down to the menopause - but have same symptoms

Boxerlady profile image
Boxerlady in reply to Ferret18

It's definitely the menopause for me 😅

oldtimer profile image
oldtimer

Yes for some years now. I used to think it was the menopause but that's now a distant memory... I have a silk lightweight duvet (bought in a sale) which I can wave about easily, but still wake in the night often saturated in sweat. I get up, go to the loo, stand and look out at the dark (or last night the stars), look at the temperature in the room (16C) and get back into bed hoping it's dried out a bit. The rheumy team have said variously that it's the steroids, the medication I'm on, it's the Rheumatoid Disease - but no solutions.

in reply to oldtimer

Parallel world old timer exactly the same down to the duvet.

It could be the RA. I had it just a couple of times before my treatment started (definitely wrong age for menopause!). I'd only had it previously when given some very strong antibiotics for recurrent chest infections. My specialist said when bugs die they release toxins and that can cause the night sweats. I had much more trouble with feeling very cold and shivery in the very early (pre-diagnosis) days of RA. I'd be wrapped up in a shawl with a fan heater blasting me and my poor husband would be sweltering in a thin shirt. It gets us all ways!!

I am nearly always hot and sweaty when everyone else is complaining about how cold they are too. I was once laying on top of the duvet all night pouring with sweat and the next day, it said it had been the coldest night for several years. Another time, my son came in from work telling me it was snowing outside when I was just about to say how hot it was. Sometimes I will sweat from the top of my head so that it runs down my face and it looks as if I have just been washing my hair. I was once out with a friend and was about to say to her that it had started raining when I realised that the water that I thought was rain was actually sweat running down my face and down my neck. Every doctor or rheumy that I have mentioned it to, just looks puzzled and doesn't seem to know what to say.

cpr02 profile image
cpr02

Not menopause for me but its been an issue since diagnosed I also seem to feel hot very easily to the point it's so uncomfortable xx

Blueskysunshine profile image
Blueskysunshine

I’ve had these for the last few weeks, which coincides with the return of swollen and painful joints. You could’ve wrung my t-shirt out last night 😕

Allije profile image
Allije

I understand what you are going through as I suffered similar problems for many many years. This was particularly bad during the menopause, but was little better 10 years later. However, after hip surgery in January this year I was told by rheumatology nurse not to restart NSAIDs as they are now not recommended for long term use. I had been taking them for probably 30years and always joked that my thermostat was broken as I was constantly hot. So many side effects which I had accepted as part of RA have now disappeared. I feel really well now (besides pain and stiffness).

As others have suggested, this may well be caused by drugs and not even anything particularly potent like a steroid.

Hope you are able to discuss with a HP soon and get some relief. Disturbed sleep is exhausting and debilitating.

Mmrr profile image
Mmrr

Yes, my rheumatologist tried to tell me it was the menopause, despite having gone through it 15 years previously. When I'm unwell I'm up and down during the night, hot and sweaty, when I'm a bit better I'm not nearly so hot.

The summer months are a nightmare...literally....for trying to sleep 🥵

in reply to Mmrr

Ditto

embroy profile image
embroy

I think you have Menopause. There are Capsules from Holland and Barrett and are called Soya Isoflavones, they are quite helpful. I have been talking them for about 6 to 7 years, no side effects it's natural, no harm in trying.

cpr02 profile image
cpr02 in reply to embroy

Me ?? X

cpr02 profile image
cpr02

Its strange because I'm not in pain ...although am just coming out of a flare up don't anticipate being able to talk to anyone soon x

Lyneal profile image
Lyneal

I often wake about 3am with hot flush, the only thing I can think of is RA. I am way past menopause.

agnes-D profile image
agnes-D

strange to say but happy to see these replies. Suffering from sweating ++ and now palpitations. GP thinks I,m mad I,m sure. On methotrexate and benapali injections both weekly. assume it must be these causing symptoms. Poor hubby has to put up with light weight duvet.

in reply to agnes-D

Welcome to the club 😁😁although not a club you want to join. Its good when you your not on your own and not going mad .My poor hubby wears layers to bed.🙄

I have been having health problems for about two years now. Initially diagnosed with CLL, chronic leukemia, which has MANY symptoms similar to RA. Sweating is one of them. I have to change my night gown and sheets sometimes. I change my clothes many times during most days. My hands and feet are always quite cold. Once at a business meeting I started dripping sweat off my nose onto the table! I have had sweating since way after menopause was over, for ten years or more.

You may also like...

Rheumatoid Arthritis: The sun is too hot!

just take Humera. Does anyone have any experience of or advice on this? Many Thanks.

rheumatoid arthritis

Hi All, I have been recently diagnosed with rheumatoid arthritis. I have been prescribed...

Rheumatoid arthritis

eating healthy . I take paracetamol when the pain get really bad. People say it can take up to...

Rheumatoid arthritis

Rheumatoid Arthritis? Is it?

(Flucloxacillin) in case these upset her Liver. My mum is 89. Thanks for any help you may be able...