An answer finally: Hello everyone I just wanted to come... - NRAS

NRAS

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An answer finally

Charlottewileyy profile image
14 Replies

Hello everyone I just wanted to come on here to update following my last post, and I can finally say WE FOUND THE CAUSE! haha I’ve never been so happy and I’m starting a treatment. I have Sacroiliitis and am going for a treatment tomorrow, it’s good and bad it’s long term but I now know the cause!

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Charlottewileyy profile image
Charlottewileyy
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14 Replies
allanah profile image
allanah

Getting an answer is fantastic and even better you get treated! So pleased for you x

Charlottewileyy profile image
Charlottewileyy in reply to allanah

Yes thank youuu x

Amy_Lee profile image
Amy_Lee

To know the cause is crucial though it may not be a good answer. At least you can start your treatment immediately. Hope you will get well soon.

Charlottewileyy profile image
Charlottewileyy in reply to Amy_Lee

Definitely it’s amazing to finally know what the cause is x

Sacroilitis isn’t fun but if it’s related to arthritis, it does also tend to respond to DMARDs etc - was my first symptom of arthritis at 16 and I’ve had it recurrently ever since, but it’s generally a lot better since treatment for my PsA kicked in. Just a shame I had to put up with it for 20 years to get to that point!! Fingers crossed whatever treatment they’re going to give you helps.

Charlottewileyy profile image
Charlottewileyy in reply to

I will definitely look into that option, thank you x

KittyJ profile image
KittyJ

I’m so glad you’ve finally got a diagnosis, I hope the treatment helps.

Charlottewileyy profile image
Charlottewileyy in reply to KittyJ

Thank youuu

Green230461 profile image
Green230461

Hope all goes well for you. Take care and have a good weekend 🌺

Charlottewileyy profile image
Charlottewileyy in reply to Green230461

Thank you! You too x

Gnarli profile image
Gnarli

So it may not be the best news but, thank goodness, you have a diagnosis and it's a treatable condition. Whoopee!

Charlottewileyy profile image
Charlottewileyy in reply to Gnarli

Yes definitely I’m so pleased to finally have an answer!

Gnarli profile image
Gnarli in reply to Charlottewileyy

No more limbo! 😁

Mmrr profile image
Mmrr

A diagnosis leads to the beginning of appropriate treatment....

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