Double vision ..linked to the disease?: Double vision... - NRAS

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Double vision ..linked to the disease?

PurpleSE profile image
10 Replies

Double vision....does anyone else experience this symptom linked to disease activity?

I m newly diagnosed with RD and originally went to my GP suffering from intermittent double vision. I also had foot and finger injuries which would not heal.

I have had an MRI and all clear. I ve also seen the consultant at the eye hospital and they believe it is muscular but tests for the usual causes have come back negative.

I have noticed that its worse when i m stressed/tired/hungry which follows the same pattern as the disease pain and yet my rheumy says its not related.

It started prior to me being on any drugs so is not related to medication.

Just wondered if anyone else has similar symptoms? Any thoughts?

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PurpleSE profile image
PurpleSE
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10 Replies
kristapb99 profile image
kristapb99

If you search on "double vision" there are some related posts from folks who have experienced this problem. Hope you get it resolved - sounds very troublesome!

PurpleSE profile image
PurpleSE in reply to kristapb99

Thanks so much for that. I will and it is!!! Off to search...

I have noted recently my sight (only got tested in April before diagnosed) and I find I struggle when tired or in a flare and get lots of blurry moments. Something I am raising at my next appointment in a couple of weeks

Kerensa21 profile image
Kerensa21 in reply to

I get similar Dee, be interested in how you get on. My vision had deteriorated 5 steps in a year & optician recommended annual checks. Got cataracts too (bit young I thought?) but he said not to worry about those yet. The eye conditions associated with this all seem to cause pain which I don’t have, just blurry at times/watery occasionally; bit worrying ☹️

in reply to Kerensa21

Watery eyes can be because you have dry eyes, ironic I known.Do you have a dry mouth?as Sjögren’s syndrome can go along side RA I started with watery eyes am about to have a biopsy to see if I do.inflammation of the eye can happen during a flare and can make you more light sensitive . Regardless everyone one should wear uv eye protection to prevent cataracts ( I worked in an opticians for 20years I’m preaching sorry!!!🤪)

Kerensa21 profile image
Kerensa21 in reply to

Thanks J, no I don’t have any other Sjogren ‘s symptoms, weird eh ? Good luck with biopsy 🙂 👍x

Fruitandnutcase profile image
Fruitandnutcase in reply to

Weird isn’t it how dry eyes can water. I’ve got really dry eyes so it’s eye drops several times a day - the secret it to keep using them even when your eyes feel good! I use them during the day and I’ve got a really thick one that’s like Vaseline for night time.

I should have said too that if you are taking hydroxychloroquine it is very important to have regular eye tests and if you have problems to stop the hydroxychloroquine- it can cause irreversible blindness.

in reply to Fruitandnutcase

I use drops and that thick stuff. It doesn’t always help but I do put Vaseline on my lashes seems to help and stop watering and stop eyes getting raw 👀

Troygirl profile image
Troygirl

I noticed I now get double vision when I am tired! Never happened before until I started all these dreadful, toxic RA drugs!!

Leics profile image
Leics

I find I suffer with double vision which is usually if I’m having a bad day with RA. I have also noticed that my ability to see in a dim light is affected more as well, I’ve never been able to see at night though. In my opinion it is dependent on disease activity because it isn’t because I have a headache or due to meds or cataracts which I now have too. So yeah sorry I would put it down to another symptom of RD.

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