It's been awhile since I last contributed here, although I read nras posts regularly. I'm 3 years into a rheumatoid arthritis diagnosis but I have never experienced the usual pain, redness, heat and swelling I read about. I've always had hip and pelvic pain that aches and burns, sometimes down my legs and into my feet. I can feel stiff and sore all day and have shooting pains in my feet that keep me awake. I get sporadic shooting pains in my hands and shoulders/arms too. I'm plagued by headaches and extreme fatigue that has my whole body ache when I'm just engaged in every day housework. I have painful IBS episodes and rosacea, ( no relation I know ), and often feel isolated by it all. I've recently been prescribed methotrexate injection as it offers potentially a more effective treatment. This morning I cried when the nurse at metaject clinic asked me how I am. Pain and restless legs have kept me awake for much of the previous few nights and I'm just feeling low and frustrated. She advised me to speak to a rheum nurse about steroid tablets although my last injection was ineffective. The one medication that has been effective is amitriptyline, I'm currently on 75mg. I am unable to take brufen etc as it affects my blood pressure. Codeine based meds makes me nauseous. Unfortunately it seems each increase in amitryptiline dose lasts only so long and then I'm struggling again. Because my pain is widespread and displayed in different ways, ie burning, shooting, aching, I feel at a loss as to how to help myself or where to turn.
Is there anyone out there that can relate? Has anyone experienced the same pain and accessed successful treatment, medical or otherwise? I would very much appreciate any advice as to my way forward.