It's been awhile since I last contributed here, although I read nras posts regularly. I'm 3 years into a rheumatoid arthritis diagnosis but I have never experienced the usual pain, redness, heat and swelling I read about. I've always had hip and pelvic pain that aches and burns, sometimes down my legs and into my feet. I can feel stiff and sore all day and have shooting pains in my feet that keep me awake. I get sporadic shooting pains in my hands and shoulders/arms too. I'm plagued by headaches and extreme fatigue that has my whole body ache when I'm just engaged in every day housework. I have painful IBS episodes and rosacea, ( no relation I know ), and often feel isolated by it all. I've recently been prescribed methotrexate injection as it offers potentially a more effective treatment. This morning I cried when the nurse at metaject clinic asked me how I am. Pain and restless legs have kept me awake for much of the previous few nights and I'm just feeling low and frustrated. She advised me to speak to a rheum nurse about steroid tablets although my last injection was ineffective. The one medication that has been effective is amitriptyline, I'm currently on 75mg. I am unable to take brufen etc as it affects my blood pressure. Codeine based meds makes me nauseous. Unfortunately it seems each increase in amitryptiline dose lasts only so long and then I'm struggling again. Because my pain is widespread and displayed in different ways, ie burning, shooting, aching, I feel at a loss as to how to help myself or where to turn.
Is there anyone out there that can relate? Has anyone experienced the same pain and accessed successful treatment, medical or otherwise? I would very much appreciate any advice as to my way forward.
Hi Debbie
When I read your comments many of them are the same in my weekly diary commnets. Burning pain, legs cramps at night etc etc. I was on amtriplyine but went on to gaberpartin then Pregablin and then did a yearly cycle of each rather than just staying on one all the time as I felt I got worse after a while. Vit d was bad so now on pills. i am every joint in pain but not red just swollenmainly and hands fingertips hot with what looks like prosis.
I think this disease gives lots of different issues for each of us and its tryig to find what works for you.
We all are here to listen on your bad days just keep in touch to make sure you dont feel lonely. x
Thank you Deeb2908 for your reply. I think that's where I am now, amitryptiline is no longer as effective. It might be time for a review. Because I dont have the more usual RA symptoms I feel a fraud for complaining on here but there are days and especially nights when the pain is overwhelming, not in its intensity necessarily but the fact that at times it feels it's never ending, there's just always some pain and stiffness. I struggle knowing my life will never be the same. I have isolated myself and need to reach out for support from people like yourself that understand. I really do appreciate your reply, thank you. I hope you're having good days xx
I use Pernaton cream on stiff/and painful joints and muscles and find it a great help. Look on internet to find local stockist -it is a greenlipped mussel cream from Switzerland. I use it every day.
Thank you Bartsia, I'll look that up, I'm open to any suggestions x