Hit a liitle wall this week.....: Boy has the fatigue... - NRAS

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Hit a liitle wall this week.....

8 Replies

Boy has the fatigue kicked in this week. Plus not getting thro to the appointmnent line for my 1st rheumy consult has been hard and will start again tomorrow (not sure why they dont answer or at least put an answermachine on). Being still on my OA pills and nothing for the RA and can feel pain and fatigue spreading thro me, so I know I need to muster energy to see my local GP and get the Rheum consult sorted.

Hate the fact lifting my arms is hard going and so painful and I hate the lack of energy as someone who likes to keep moving and being on the go. I have known for 3 months the OA pills were not really working but need something to keep me going til I get put on something else for the RA.

However in our little piece of paradise on the Fens we can walk outside and get a cooling breeze no matter what time of day to help you chill out.

In my next life I will be a cat as my 2 certainly have the life of Riley and very chilled.

8 Replies
JFlay profile image
JFlay

Hi, not sure what happens in your area but where I live the referral to first appointment time is within 7 weeks. I had to wait about that long for mine. Are you on any steroids? I'm not but was given a general depo steroid injection at my first rheumy appointment (didn't work for long though 😒) to tide me over as the DMARD's take quite a few weeks/months to start working. Hope you get your appointment sorted soon.

Lolabridge profile image
Lolabridge in reply toJFlay

You could see your GP again and ask for some oral steroids to tide you over till you get to see the Consultant if the GP won’t give you a Depomedrone injection. Also ask the GP if the referral can be chased up.

Not being able to lift your arms properly is very debilitating. It makes washing, dressing and brushing your hair very difficult.

Give in to the fatigue and rest - it may help the effect of the other symptoms to reduce.

Hope you get some help soon.

in reply toLolabridge

thank you for info will ask GP as somethng needs to give x

in reply toJFlay

thank you seeing GP Wed so will ask x

charisma profile image
charisma

Hi Deeb

I have so much pain with arms too, due to neck and shoulder pain; arms need support eg on a cushion on my lap.

I am currently off RA meds, waiting for biologic. But on oral steroids now, just getting relief. ‘Whole body’ steroid did not work. :-)

sylvi profile image
sylvi

Where abouts in the fens do you live darling. Hugs.xxx

Near Guys Head moved here for abetter quality of life and hubby hits an undiagnosed illness in Jan and then me RA! Got ot laugh or would cry x

I get you the pain you can get some relief with painkillers. But the fatigue!!!!!? I have never mastered any relief all you can do is rest and wait to pass. I often loose days and feel like like my life is just passing by in a blur. See your GP as others have said.

Good luck just rest and go with it.

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