Mouth ulcer

[Matilda_1922]

Hi

I’ve had an ulcer on the base of my tongue for the last 3 days.

I have tried using bonjella with little relief it’s difficult to reach that part of my tongue.

Does anyone know any other remedies I can try as this is getting me down.

[Mmrr]

Are you on MTX Matilda ? I used to get Difflam throat rinse on prescription for my MTX induced mucositis and ulcers. Initially the GP was reluctant to give the prescriptions as Difflam is expensive (£9 a bottle and I needed 2 per week), but both the local pharmacist and dentist recommended it and he gave in.

[Matilda_1922 in reply to Mmrr]

I’m on methotrexate have had mouth ulcers in the past but not as bad as this one.

I have an appointment with GP next week for another RA problem which the Rhuematolgy consultant completely dismissed at my last review in March.

It’s no wonder GPS are under pressure.

I will persevere with bonjella and wait and see.

[Mmrr in reply to Matilda_1922]

I thought this website was about supporting each other and giving suggestions about what might work to alleviate 'things that get us down' as your say your mouth ulcer is ? so tried to offer support.

You know nothing about my issues with MTX but seem to have jumped to conclusions ......difflam helped enabled me to stay on MTX for 50 weeks, otherwise I could not have coped with 'hundreds of microscopic' ulcers identified by dentist and mucositis caused by MTX.

Difflam worked were bonjela and salt mouth washes didn't. My pharmacist does not recommend bonjela with MTX and suggested stopping it.

GP shared care, is about the GP trying to make life bearable and carryout low level monitoring of people on DRMARDs. When the expert in oral health , the dentist, and the expert in pharmaceuticals, the pharmacist suggested difflam , and having no other suggestions to offer, the GP gave in and gave me the prescriptions and my ulcers all but disappeared. A wise man.

[Matilda_1922 in reply to Mmrr]

I’m sorry you felt I wasn’t listening to your advice. I can empathise how you feel as I have suffered with mouth ulcers and cold sores since diagnosis in 2016 but this one has been the worse.

It is difficult to get an emergency GP appointments and as I have an appointment already I haven’t tried to get an appointment with GP. If it continues over the weekend I will call 101 to get an out of hours appointment.

I was going to boots today to try what you have suggested and will ask GP if I can have

Diflam especially I have tried the same options as yourself.

I really appreciate your advice.

[Mmrr in reply to Matilda_1922]

Cheers. I hope you find a solution.

[mccaffs2014]

I found Boots Mouth Ulcer Gel more effective than Bonjella. Worth a try!

[Matilda_1922 in reply to mccaffs2014]

I went into boots and they suggested bonjella or a mouth wash.

I will try again I can’t eat as it’s too painful.

I take folic acid every day apart from MXT day. I take 10mg day before and day after

[Matilda_1922 in reply to Matilda_1922]

Thank you for your replies

[mccaffs2014 in reply to Matilda_1922]

I always thought Bonjella was a teething gel, probably because my daughter in law had it, and gave it to me. When it didn't work I used the Boots brand. It numbed it fairly fast.

[Mmrr in reply to mccaffs2014]

Bonjela has a few contraindications which many people do not know about. I have a very good pharmacist who recommended not using bonjela with DMARDs without checking with the pharmacist or GP first.

Bonjela is lso not recommended for use for people under 16 years of age, or for anyone with a salicylic acid (asprin) sensitivity, which is a component of sulphasalazine, which many of us on this site take .....and several have sensitivities too.

I never buy anything over the counter without asking the pharmacist first. I've found them to be very knowledgeable and helpful.

[Matilda_1922 in reply to Mmrr]

I will ask to speak with the pharmacist today for their advice. I spoke to an assistant yesterday as pharmacist was at lunch.

Thank you again

[mccaffs2014 in reply to Mmrr]

That's good to know. I need to change my ways . Thanks Mmrr

[Nessa28]

Put a desert spoon of pure turmeric powder in your mouth start to move it around with your saliva if you can keep it in for as long as possible . Tastes absolutely disgusting but you get used to it . It's a fantastic anti inflammatory and antibacterial which is natural and won't upset the flora in your mouth . Do this 2x a day then taper down to eventually once a week marvellous for sore throats and mouths and whitens your teeth at the same time . A teaspoon every day in milk is good for you . 🌷

[Matilda_1922 in reply to Nessa28]

Thank you for your kind advice

I will try this remedy you have suggested.

[Nessa28 in reply to Matilda_1922]

I'm not saying it's wonderful but it does work and it's cheap with no side effects and very good for ant acid and indigestion xx hope you feel better soon xx

[Joy_1]

Hi Matilda

I had horrendous mouth ulcers from taking MTX. I spoke to the pharmacist and he said "don't waste your money just use saline". It worked for me. I have recommended it quite a few times and those that have tried it have all said it works for them.

So a sprinkle of salt in water. If you use warm water more of the salt will dissolve. Regular table salt is fine. I was told to swill the saline around my mouth 5 times a day. I could not swill because it was too painful so just held the saline in the mouth. Took 2 weeks to go but all 4 huge ulcers went. Each time I felt them coming back I used the saline for 48 hrs. A couple of months on the ulcers gave up!

Nice to have a simple and safe solution to things for a change!

[Georgiab123]

I had ulcers regularly until rumi told me to increase folic acid from 1per week to 6per week

[Matilda_1922 in reply to Georgiab123]

Thank you for your reply I’m already taking 8 folic acid a week.

[Georgiab123 in reply to Matilda_1922]

Sorry about that maybe consultant should look at your meds’ poor thing nothing worse

[Matilda_1922 in reply to Georgiab123]

I’m seeing my GP next week as my next consultant appointment is next year

[Georgiab123 in reply to Matilda_1922]

Good idea Matilda hope you get help

[mistymeana]

I used to get the rotten things all the time and found sucking liquorice helped. The trick is keep it as close to the ulcer as you can once it's started softening and dissolving.

[Matilda_1922 in reply to mistymeana]

I like liquorice so will try this

[weathervane]

I gargle with salt water and cider vinegar, i find it soothes the pain . I hope the ulcers clear up soon 🌸

[PINKY246]

I don't know if this will relate to your problem or not but I read on Google somewhere to put a tums with calcium in it on the sore and let it dissolve itself. You may have to do this several times a day. It's worth a try.