Bone scan: Hi everyone. Hope all is well. My... - NRAS

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Bone scan

Rheumagal profile image
33 Replies

Hi everyone. Hope all is well.

My Rheumatologist is sending me for a bone scan. Has anyone ever had this procedure before? I’d like to know as much as I can if possible to lessen my anxieties. Thanks ♥️

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Rheumagal profile image
Rheumagal
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33 Replies
Shalf profile image
Shalf

Hi Rheumagal

I haven't had this but it's been suggested to me following incident with my hand/wrist.

I understand it's an expensive procedure. I'm interested to know more too and will be watching this thread for info!

Xx

hawker955 profile image
hawker955

Hello Rheumagal. Yes annually. Nothing to worry about at all. Youjust sit still while thy run the scanner over the bones they want to scan and wit takes about 30-60 seconds. Then they may well scan another siteas well. It is a while-you wait procedure!

Rheumagal profile image
Rheumagal in reply tohawker955

Thanks hawker955. They told me about 4-5 hours in total. They inject some radioactive medicine first. Then about 2 hours for the actual scan.

Do you feel any reaction to the medicine?

hawker955 profile image
hawker955 in reply toRheumagal

I didn't have any injection for my scans. I just sat there, smiled politely and chatted away while they worked. So I can't help I'm afraid.

Rheumagal profile image
Rheumagal in reply tohawker955

Thanks. ☺️

wishbone profile image
wishbone

Can I ask why you are having a bone scan? I'm just curious.

Rheumagal profile image
Rheumagal in reply towishbone

Hi wishbone. My Rheumatologist wants to have a more thorough scan of my bones and joints to check for any widespread inflammation and bone/joint damage.

NeonkittyUK profile image
NeonkittyUK in reply toRheumagal

I had an "isotope bone scan" in 1995 which showed the "hot spots" of my arthritis on the results. I didn't have any injections of contrast dyes or anything like that so it sounds like it's a different type of scan but for exactly the same reasons - to detect RA. It took about 15 to 20 minutes whilst I laid under what I could describe as a large photocopying machine. It scanned and moved over my entire body head to toe. It was very uneventful! 😃 Things move on in the way they scan you and mine was 24 years ago. You could phone the X-ray department up and ask them more. They usually send you a leaflet about the procedure you are going to have. Please don't worry. X

wishbone profile image
wishbone

Thanks Rheumagal, yet more questions if you don't mind... is that with the NHS or are you going private?

Rheumagal profile image
Rheumagal in reply towishbone

I’m in Canada. Thankfully it’s covered unlike my Ra meds

wishbone profile image
wishbone in reply toRheumagal

Ah right, thanks Rheumagal.

Good luck with the scan.

Elmo333 profile image
Elmo333

I had a bone scan right st the beginning (ordered by nhs rheumatologist). It was fine. They injected some dye, sent me off to drink lots for a couple of hours and then had the scan. Just laid on a table whilst the scanner passed over the top. No tunnel so not claustrophobic like an MRI. My only problem is that I was desperate to pee the whole time due to the drinking!!! It is very sensitive and shows up inflammation clearly. Good luck!

Rheumagal profile image
Rheumagal in reply toElmo333

Thanks so much Elmo333. Glad to know

Matalow profile image
Matalow

Yes I’ve had a few bone scans,nothing to worry about the scans I’ve had are called Dexa scans.

Mike

Nanna71 profile image
Nanna71

I had a bone scan years ago before I went through menopause for I don't remember what reason. It takes a long time, as I recall, involves no pain, and is really, really boring. Sort of a slow xray. At least, that's the way it is in Canada. No worries, bring a book.😊

Shalf profile image
Shalf in reply toNanna71

If they send you away to 'drink lots for a few hours' - I would cure my boredom no problem. 😂

Rheumagal profile image
Rheumagal

Thanks for all the info!

crazylady57 profile image
crazylady57

Hi Rheumagal, nothing to it. I had visions of going into one of those MRI scanners, but you just lay on the bed and this arm thing just passes over you. Please don't worry.

Moomin8 profile image
Moomin8

I've had one - no problem tbh. It turned out I was not great, but not bad: middle of the road, considering my age 😉🤣 I was told to make sure I continue taking vitD3 (Fultium 800) twice a day and continue to exercise when I can. I walk to work and back so can't do more 😇

dbestdeb profile image
dbestdeb

My rheumatologist orders one every other year. Steroids cause bone loss and she is careful to check my bones and calcium levels always. She says a broken bone with RA pain is just too miserable.

nomoreheels profile image
nomoreheels

The bone scan (Bone or Skeletal Scintigraphy) did they specify what it was for? It's just some seem to be mistaking one from another. There's a bone scan which checks the whole body & is usually ordered where there's suspection of bone disease. The machine is a donut shaped scanner. An isotope (a radioactive tracer) is injected before the scan which is around 2 to 4 hours later. This takes anything from 10 minutes to an hour usually depending if one area is scanned or the whole body. The other is a DEXA scan (Dual Energy X-ray Absorptiometry) sometimes also called DXA. This usually just checks one or two areas, the hips & spine are the areas mine centre on. The machine is a table with an arm which passes over the area/s to be scanned, more open than the other. This is to check the density of your bones, gives an estimated fracture risk & is usually only 10 minutes or so. Most often ordered where there's suspected osteoporosis or if you've been on steroids longer than short term doses.

Rheumagal profile image
Rheumagal in reply tonomoreheels

They will be injecting a radioactive tracer and doing a full body bone scan. My Rheumatologist wants to see how extensive my inflammation is. I was told by the clinic to expect at least 2 hours for the actual scan.

Thanks nomoreheels for replying. I was a little nervous about the injection part, not sure what I was to expect.

I’m also going in the week before for a hida scan of my liver which is very similar but specifically to check my liver. They suspect autoimmune hepatitis but want to rule out a blockage.

nomoreheels profile image
nomoreheels in reply toRheumagal

I thought as much. I've never heard of it being used for that, I have for infection but not inflammation, you learn something new every day! I hope it's not a drawn out procedure for you & it shows clearly the inflammation you have going on. It might be an idea to take a book or something to keep you occupied, unless someone is going with you. Do let us know how it went won't you? The HIDA scan too. You'll be glowing! 👽

Rheumagal profile image
Rheumagal in reply tonomoreheels

Thanks. Yes! I know

ButterflySue profile image
ButterflySue

Hi, I had one done last week, but I live in Spain so it may be different. You lay on your back on a bed & overhead machine about same size of the bed & about inches above just hovers from head down to feet & back again! (With the lights on!!)

It was the same procedure when I lived in the U.K. & had it done, over 20 years ago.

It really is nothing to worry about, but we’re all the same first time round!! Very informal & I was even told I needn’t have taken my shoes off!!!

Enjoy!! 🤗x

NeonkittyUK profile image
NeonkittyUK in reply toButterflySue

Sounds exactly like the one I had in the UK in 1995. I was almost asleep I relaxed so much! It wasn't noisy either .. Just a few whoosh type noises every now and then as it moved.

ButterflySue profile image
ButterflySue in reply toNeonkittyUK

When I had my first one done in the U.K. (probably the same year as you!) it was only a few months after I’d had my navel pierced. I was more worried how I was going to get it back in, as it was the first time I’d removed it!....so the time went quickly!! 😳🙄🤗

NeonkittyUK profile image
NeonkittyUK in reply toButterflySue

😁😱

lKeith profile image
lKeith

Rheumagal

Hi, As it happens I went for one of those bone scans yesterday. There are 2 ways of doing this, you either lay flat on a special bed whilst the machine scans your body, or there is a CT scanner.

I had the CT scanner (new model) the whole body was done within 10 minutes. It was like a tractor tyre, no canister to negotiate. You lay again on your back, or in my case side , and the bed takes you into the centre of the tyre, all quite speedy & easy & no pain or discomfort to the patient.

IKeith

Dobcross1 profile image
Dobcross1

Hi Brushwork, I have Bradycardia too and always get the athlete question - I wish 🤣😂. It's on my records but has never bothered me or stopped me doing anything and hopefully you will be the same 🤞. I'm sure I read somewhere that there's a link between RA and Bradycardia a while ago...

nomoreheels profile image
nomoreheels in reply toDobcross1

Just in case you want a response do you realise you've replied under the wrong post D?

Dobcross1 profile image
Dobcross1 in reply tonomoreheels

Thanks NMH, I'm obviously still half asleep! 🙄

nomoreheels profile image
nomoreheels in reply toDobcross1

No probs. 👍

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